MGUS diet: Any tips on food to enjoy or prevent progression?

Are you being treated at a cancer research hospital? Fortunately, you are the patient. You get to ask questions and find answers. Your friend is doing what some functional doctors suggest. One i listed to does it red meet. She also stresses half your body weight in ounces of water every day.
I would be frustrated too.

A friend was diagnosed with Leukemia who did stem cell transplant from her own body. She also majorly cleaned up her diet. She is very strict about what she eats & drinks. She eats no processed foods, dairy, red meat, or sugar. She check all ingredients to make sure they are not inflammatory & don’t contain any ingredients that are not safe. She is in remission & seems to be doing well.

I have MGUS, but also a lot of other auto-immune disorders (about 10). I feel that everything is related. I have not found a good primary or other doctors to work with yet. I have kind of been on my own, but have been getting blood work regularly with the numbers going up for the M—Spike 0.19 & IgM 452 & Beta Globulins 10.6 & BUN 64 & Albumin 60. I have peripheral neuropathy in my hands & feet, Lupus SLE, Psoriasis, & ANTIPHOSPHOLIPID Syndrome, beside some other things. I am easily fatigued. The hematologist / oncologist feels that I have smoldering Waldenstrom or Multiple Myeloma & don’t need any care or treatment for any of this. So, I am kind of frustrated.

A friend was diagnosed with Leukemia who did stem cell transplant from her own body. She also majorly cleaned up her diet. She is very strict about what she eats & drinks. She eats no processed foods, dairy, red meat, or sugar. She check all ingredients to make sure they are not inflammatory & don’t contain any ingredients that are not safe. She is in remission & seems to be doing well.

I have MGUS, but also a lot of other auto-immune disorders (about 10). I feel that everything is related. I have not found a good primary or other doctors to work with yet. I have kind of been on my own, but have been getting blood work regularly with the numbers going up for the M—Spike 0.19 & IgM 452 & Beta Globulins 10.6 & BUN 64 & Albumin 60. I have peripheral neuropathy in my hands & feet, Lupus SLE, Psoriasis, & ANTIPHOSPHOLIPID Syndrome, beside some other things. I am easily fatigued. The hematologist / oncologist feels that I have smoldering Waldenstrom or Multiple Myeloma & don’t need any care or treatment for any of this. So, I am kind of frustrated.

Hello, I’ve been diagnosed with mgus since 2017 and my numbers are steadily increasing. Latest labs said my m-spike numbers was at .6 which is .2 points higher than a year ago. Has anyone heard of stem cell therapy as a means of curbing increasing numbers?

Amber,
You mentioned peripheral neuropathy related with SMM. An tiredness.
I will mention these to oncologist, I kept wondering ‘ why’ these two things are happening
Tuesday when I talk with her I will ask her about these two symptoms.
She wants to start light chemo soon to slow down my numbers from increasing.
Appreciate you sharing what you have learned in a clear and understandable way
Thank you

Amber,
You mentioned peripheral neuropathy related with SMM. An tiredness.
I will mention these to oncologist, I kept wondering ‘ why’ these two things are happening
Tuesday when I talk with her I will ask her about these two symptoms.
She wants to start light chemo soon to slow down my numbers from increasing.
Appreciate you sharing what you have learned in a clear and understandable way
Thank you

Hi Terry,
I’m retired LEO also with smoldering multiple myeloma. I intentionally retired at 55 as we were allowed to go then (who wants an old cop?). We have our unique set of problems, don’t we? But if you’ve been married 45 years, kudos to you! I know who the strong one is in the family!
But MGUS and the progression/fear of progression is not for the faint of heart. ❤️ I’m certain I had undiagnosed MGUS the last five years of my career, I was tired a lot, more than the adrenaline dump fatigue. I truly believe it adds to the struggle, we have abnormal paraproteins filling up our bone marrow, contributing to peripheral neuropathy, and generally stealing our oomph. My MM specialist who ordered my bmb which confirmed I had SMM, not MGUS as the hematologist guessed, said fatigue is common with those who have SMM. I believe it contributes to MGUS fatigue as well altho there’s not proof of this scientifically, just empirically. I’m also a RN, so I’ve done a lot of reading of medical studies, as I’ve learned a lot from groups like this.

I don’t know what to tell you. We are strange, stubborn creatures, us LEOs. Do take care of yourself, if you have spare energy then feed him nutritiously, exercise with him, encourage him to lean on his faith or practice meditation, or similar. Go to his medical appointments so you know what the doctor really said. We underplay everything, as you know. We deny until the last breath in many cases but some of us learn it’s good to get the specific labs done religiously, so we can at least control any progression by catching it early and getting an early jump on treatment.

All the best to you, St Terry!

Husband is the one w MGUS, Plus his degenerative disc disease from. C2-T1 and worsening at T2. I spent 45 yrs doing medical research so while not my area of expertise I do.have the desire & energy to research, read medical.journsl articles, and I do the grocery shopping and 90% of the cooking. He is pretty stubborn about improving his diet
It's been a difficult adjustment. He was an avid snow skier, white water rafting, motorcycle riding then his back became an issue and he was medically retired from.his career in law enforcement about 5 years earlier than he had imagined. So he has depression and grief over what he's lost to add to his physical chronic back pain, and the PN discomfort. We are fortunate he purchased disability insurance (no union as a LEO) and I'm retired military so we have pretty stellar insurance. It's as much a mental health challenge/orientation for gratitude vs despair. It almost destroyed our 45+ yrs marriage and there are times we skate on thin ice. I try to stay as healthy as I can, but I too, at age 70, have my own health issues. Fortunately, I have a great PCP and a great therapist & sons & DILs who, while far away geographically, are huge emotional supports. They would do same for him, but he won't let anyone "in" except to unload his negativity on them.