Have MGUS and just caught Covid: Did Covid affect your numbers?

Posted by amyboylan1 @amyboylan1, Jun 8 4:54pm

I was just diagnosed with Covid and was diagnosed with MGUS about a year ago. I am wondering if anyone has had Covid with MGUS and how Covid affected your numbers if it did. I appreciate anyone who can respond I am scared.
Thanks, Amy

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I've had COVID a couple times since my diagnosis. I don't think it affected my numbers but that's not really something that's really determined without testing right before, during and right after the sickness. My M protein increased slightly but my FLCs got better. I just think that's the progression and COVID didn't play into it.

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Yes I caught Covid from my housekeepers, who were so sick they went to the hospital ICU following their visit to me!?!? I was so angry.
I caught Covid from them but did not realize I was ill. The only sign was the very large escalation in my free light chain numbers - BOTH kappa and lambda. I am IgG lambda. I had my blood drawn a week after this escapade and then again two months, four and six months afterward. The kappa and lambda finally came down but not to the levels I had pre Covid.
I have had bloods drawn after my 9 Covid vaccines - there has been no effect - which is interesting.

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Catching covid in March of 2023 did not affect my MGUS bloodwork. I was pretty sick from it but not hospitalized.

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Thanks for your comment. If you’re comfortable saying I’m curious how long you’ve been in MGUS. Thanks, Amy

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Profile picture for mikxtr @mikxtr

I've had COVID a couple times since my diagnosis. I don't think it affected my numbers but that's not really something that's really determined without testing right before, during and right after the sickness. My M protein increased slightly but my FLCs got better. I just think that's the progression and COVID didn't play into it.

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@mikxtr
Same.

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I tested positive too about 3 years ago but never had COVID 19 then or up to now.

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I have had MGUS for 2+ years and my numbers have remained stable. I had COVID about a year after being diagnosed and my hematologist told me not to worry and that she did not think that it would impact my numbers. And, luckily, it didn't. (And I was very worried.) Really important to have a doctor/nurse that you can contact with questions/concerns who will respond quickly. Makes a huge difference.

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Profile picture for scalm @scalm

I have had MGUS for 2+ years and my numbers have remained stable. I had COVID about a year after being diagnosed and my hematologist told me not to worry and that she did not think that it would impact my numbers. And, luckily, it didn't. (And I was very worried.) Really important to have a doctor/nurse that you can contact with questions/concerns who will respond quickly. Makes a huge difference.

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Thanks for responding. Do you do anything special to keep your numbers from progressing? I feel like my anxiety might be less if I’m going something to help myself.

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From everything that I have learned, there really isn't anything to do that will absolutely slow progression. The only thing that I decided to try was circumin, which I have read on this site (and others) shows some positive results in SOME people. I am cautious about mega-dosing anything new and checked in with my hematologist before even starting on a low dose. She didn't see a problem with doing that. I can't say whether or not it is helping, but I tolerate a low dose well and figure it can't hurt! (I take Integrative Therapeutics Theracumin HP 600 mg daily. I am considering upping the dose to 900 mg daily.) And you are not alone in your anxiety! This diagnosis was shocking and frightening to me. But I am trying to not have it be the focus of my life and remind myself that "nothing bad is happening". When and if it progresses I will have to deal with it but right now I trust my doctor and she is very reassuring.

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