MGUS: Please, let me know I not alone

I have just been diagnosed with MGUS at 73.
I ask my Hematologist about B12. She ran my levels and mine was 322. The range is 211 to 911. Since mine was on the low side of within range. She told me to take Sublingual B-12 to help raise my B-12 level.
It is my understanding it could take several weeks before noticing, if any, help from the B-12

Hello everyone,
I have found these scientific works published in 2021, on effects caused on the skin by MGUS.
Has anyone studied them?
Do you know of other similar jobs?
Thank you so much.
https://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-98872021000500747

I had low iron in 10s for 15 years, oral iron always brought it back up. PCP didn’t want me to take iron all the time. After covid vaccination it did not go back up with 5 iron infusions. PCP suggested hematologist and I was diagnosed with Waldenstrom’s Macroglobulemia. Did vaccination turn lymphoma on??

I was diagnosed with MGUS 3 years ago after more than a year of low grade anemia. I see a hematologist oncologist as well. I had a bone marrow biopsy to confirm the diagnosis but have no treatment or special diet. My bloodI was originally tested every six months but since my protein level has been stable since diagnosis I now am tested once a year and I see the doctor to discuss the results. Frankly I sometimes forget I have MGUS. If it turns into multiple myeloma I will get treated but I don’t worry about it since there is nothing I can do Your post was helpful since many of the other posts seemed to be having a lot of concerns regarding the diagnosis. Your journey with MGUS is very similar to mine. Thanks

Going to Mayo Clinic is an excellent idea! Due to MGUS I flew from Los Angeles to Rochester, MN to get thoroughly checked out on all sorts of concerns. Be sure to use their travel agent, $25 extra charge, in case you need to stay longer. Mayo has an agreement with Delta to prevent charging for flight changes in case you need to stay longer. I did not need travel insurance five years ago.

Relax, take a deep breath and do it. Go to Mayo! I’m glad I did!

@gmichelle There is no clearcut evidence that it is always linked, but some people do experience low iron and anemia with MGUS. In my own experience, there are contributing factors with other health issues, and altogether, it created anemia. That said, it is my opinion only, that the whole person must be taken into account, not just one single thing. I advanced from MGUS to Smoldering Myeloma to Multiple Myeloma in short order, which was truly unusual. Coupled with end-stage kidney disease and, well, it was a perfect storm of things happening. My kidney disease is not related to MGUS or myeloma, but rather an ultra-rare autoimmune condition.

Here is what John Hopkins has to say about MGUS and anemia: https://www.hopkinsmedicine.org/health/conditions-and-diseases/monoclonal-gammopathies
Ginger

I have had MGUS for 3 years. I have developed low Iron and anemia. Is this common with MGUS? My Dr. told me no more COVID shots because my Iron bottomed out after receiving several booster shots. Want to know if this is just a fluke or does MGUS over a period of time contribute to low iron and anemia.

We have a holuday every year always just got normal insurance not sure if you have to have specialust insurance now .....still trying to get my head around things at the moment first reaction was panic no im trying to find out as much as i can dont know anything about levels just that my consultant said simething about 8 and it not being high so next blood test in june i will be prepared to ask questions thanks for reply x

@hels Welcome to Mayo Clinic Connect! As you read through the posts here, you see a wide range of experiences. Like you experienced, MGUS is often diagnosed while our doctors are checking for something else. The very biggest percentage of time, people go many years without any progression of the condition. Most of us have quarterly labwork done to watch the numbers.

Have you gotten travel insurance in the past?Honestly, it's not something I had ever considered, but then again I am not much of a traveler.
Ginger

Just been diagnosed myself with mgus complete shock as went for rountine blood as my iron was low my head is spinning please let me know if anyone out there has had this a long time with no progression also silly question but do you need special travel insurance i intend to have as many holidays as i can didnt cross my mind to ask at consultation