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Metastatic Prostate Cancer: Where do I go from here?

Posted by dsingstock @dsingstock, Sep 26, 2022

PSMA PET scan revealed radiotraser uptake in the right 7th and 9th ribs consistent with osseous metastasis. . Where do I go from here. I am 82.

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bettwils16 | @bettwils16 | Dec 15, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

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Thank you! Have a nice Christmas and a healthy New Year.

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itterac | @itterac | Dec 16, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

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I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

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3 replies
rxharleydude | @rxharleydude | Dec 16, 2022
In reply to @digger "I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had..." + (show)
@digger

I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had a pain in my back turned out to be a new spot of cancer on my lumbar 9th rib put me on chemo had 5 cycles just started Xofigo radiation treatment today don’t know what to expect will see digger

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How did the chemo go and how long were you on it?

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spryguy | @spryguy | Dec 16, 2022
In reply to @itterac "I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one..." + (show)
@itterac

I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

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You will probably need a few more psa tests (at 30 days??) to confirm the uptick and then explore the options.
I am pretty sure you have enough PSA in your system to have an accurate PSMA PET/CTscan. That's what I would push for. It will pinpoint any P cancer hot spots. Treatment can then be designed specifically for those spots. Don't go by my say-so I read a lot but I am no pro. Merry Christmas

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melcanada | @melcanada | Dec 17, 2022
In reply to @itterac "I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one..." + (show)
@itterac

I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

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Yes same path as you When I was 74 had radiation then on Zolodex for 2 years In 2021 had to have L2 radiated to take out 1 inch metastatic cancer Then 1 1/2 years bone scan shoed some areas in my T11 T12 and left hip So my stage 4 castrate sensitive is going castrate resistive In Jan after our Aruba cruise medical oncologist putting me on Enzalutamide 4 daily chemo pills Prognoses if hopefully 5 years or more I am 78 now

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melcanada | @melcanada | Dec 17, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

Jump to this post

Yes same path at 74 had radiation then on Zolodex for 2 years In 2021 had to have L2 radiated to take out 1 inch metastatic cancer Then 1 1/2 years bone scan shoed some areas in my T11 T12 and left hip So my stage 4 castrate sensitive is going castrate resistive In Jan after our Aruba cruise medical oncologist putting me on Enzalutamide 4 daily chemo pills Prognoses if hopefully 5 years or more I am 78 now

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spryguy | @spryguy | Dec 17, 2022

Despit all you have been through it seems you have a positive attitude.
That's valuable. I'm 75 and suspect a similar path is coming my way.
We enjoy cruising as well and hope there are a few more in our future.
Merry Christmas to you and your wife.

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agustinferrari | @agustinferrari | Dec 17, 2022

What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed?
Im 47 diagnosed on 8/2022.

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1 reply
markinch | @markinch | Dec 18, 2022

I’m 88 and diagnosed July 2022. Big surprise! We’ve been in PCLO clinical trial for 20+ years. On ADT therapy at Mayo, Leuprolide inj (3month) and oral abiraterone 250 mg daily. Feeling fine, few hot flashes, definite weakness overall. Good luck.

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1 reply
haft2hunt | @haft2hunt | Dec 18, 2022
In reply to @agustinferrari "What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed? Im 47..." + (show)
@agustinferrari

What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed?
Im 47 diagnosed on 8/2022.

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I was dx in 2021 stage 4
Im 57 and not going anywhere soon
I try to keep researching without it becoming overwhelming.
Gotta give it to god
Wish you all the best

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