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Metastatic breast cancer: Anyone else?
Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??
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Hi! I have the same problem as you. I had mastectomy in 2014. No radiation or chemo, took tamoxifen about 3 years. It caused too many side affects at work. I started having problems 3 years ago. The doctor checked for heart problems, no checking for cancer even when I told him it didn’t feel like a heart problem. He knew I had breast cancer but never checked for that. Symptoms kept getting worse, went to a different doctor 4 months later & she ran a whole bunch of tests and found Mets to lungs , ribs, spine, hips. I was on Ibrance & Letrozole for over a year & a half until it quit working. They tested me & found out the cancer had a Pik3CA mutation. I am now in a stage 1 clinical trial of a drug that targets it. I have been on it about a month, no side effects yet. Hopefully it works. Only my close family members know about my diagnosis no one to really discuss things with. I don’t want my family to worry about it. Doing ok otherwise.
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10 Reactions@zolamiller7 have you tried breastcancer.org? There are dedicated threads that are only for those with MBC.
How was yours found/diagnosed?
I hope you find breastcancer.org helpful!
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6 ReactionsHI I had Breast Cancer in 2008 which was sucessful and it came back in 2019
as MBC-so I have spinal,rib,hip fractures and skull tumors.Have Xgeva
Ibrance,Fasolodex,and 2 others that did not work and am on Ihertu now.
Its hard to find a MBC support group which I would really like as the issues and treatment are different. Have you found one?
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6 Reactions@slebonfan, I add my welcome. Like @eku, I look forward to learning more about you and how you are doing.
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1 Reaction@slebonfan
I'm sorry about your diagnosis. A friend of mine says "welcome to the worst group with the best people in it".
Would you like to share your story? When was your diagnosis? What is your subtype and sites of metastases? What are you prescribed?
I hope you are well mentally and physically. 🌻
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4 ReactionsI've also got Metastatic Breast Cancer.
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5 Reactions@sirene I should probably stay out of a thread on stage 4, to avoid confusing people...I just saw a post on LVI come up...
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2 ReactionsThanks for the clarification. I misunderstood.
I was responding about LVI, not stage 4. I do not have recurrence (despite the thread topic). I often ask how anyone knows, but it seems people mostly seem to find out via imaging for another reason! Sorry for the tangent.
How did they find the recurrence?