Metastatic breast cancer: Anyone else?
Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??
Interested in more discussions like this? Go to the Breast Cancer Support Group.
Connect

Hi @nancy2952 i have been on that exact mix since november 2017. For me totally doable. Lots aches, but stretching helps. I have insomnia too, but sleep meds also really help - either ambien or melatonin. I was diagnosed with BC june 2016, chemo, radiation, surgery. October 2017 saw it metastasized to my spine. Holding study since starting this mix of meds. I am 39 ueras old.
-
Like -
Helpful -
Hug
1 ReactionHi, Nancy. I am 69 and on the same drugs (iBrance, letrozole, Xgeva injections) as you are for a year now. (I also had whole brain radiation for MBC to the brain in addition to spine and pelvic.) The iBrance has made things "stable" for now so hoping for the best for now. I had Stage II breast cancer and all the treatment that goes with that 18 years ago and was fine until MBC diagnosis last year, which includes anemia, causing me to feel weak and tired much of the time.
-
Like -
Helpful -
Hug
1 ReactionI was recently diagnosed with Invasive Ductal Carcinoma. I was wall set for surgery and then a PET scan revealed some metastasis on some bones (3 spots). All of this stated on June 5th. I am scared to death. I meet with my oncologist for the first time today, I believe I am beginning chemo today, but I am unsure. I am only 41 and I have a 4 and 3 year old. I have no idea what to expect, anyone been through this? Is it possible to over come this?
I have been on the Ibrance and letrozole for two weeks. I will be getting the first Xgeva shot Wednesday. So far I feel fine and have had no side effects.
Hi @nancy2952, welcome to Connect. I'm tagging fellow members @karenatmayo @sistie @rae3 @194719731977 and @wandering, who have had one or more of the 3 drugs you are taking: Ibrance and letrozole and Xgeva.
Nancy, how long have you been on this regimen? How are you feeling?
I was recently diagnosed with MBC in my bones. My doctor has me on Ibrance and letrozole and Xgeva injections. Has anyone else tried this treatment plan?
HI dear @rae3 & @nicole66
Welcome to the group. I don't know where to start but cancer patients are far more surviving their cancer than before. There are so many new treatments and medicines that they are mindblowing. I just wish you all good luck and lots of positive energi. Here in Sweden we read about that nowadays 70% of cancer patient survive their cancer thanks to new treatments and medication. I am one of the lucky ones who has survived my breast cancer for the last 23 years & changed both treatments & medications many many times. Falsodex together with chemo helped me almost a year but suddenley it was time to change and this time must change chemo treatment again.
Just remember that life is wonderful specially when you have your beloved ones with you and they show their happiness in having you around. Nicole please let your mother know how much you and the rest of family loves her. She must be really afraid of every shadow now. She needs reassurances that she is needed and that her family stands by her and need her. Have patience and get help from your community to help her better. Don't let her imagine for one moment that she is consuming your time and energy.
Dear Rae, wish you all the best and goodluck. You are going to have your hair grown again. Take care of yourself and sorry I don't know about the possible solutions to your problem. But remember your life is precious, every day, hour, Enjoy it as best you can, cry but have fun, too.
-
Like -
Helpful -
Hug
1 ReactionHi @nicole66, welcome to Connect.
You'll notice that I moved your message to this existing discussion about stage 4 breast cancer. I did this so you could meet others talking about metastatic breast cancer and treatments, like @wandering @mertdog2000 @elvandi @djankord1 and others.
Nicole, there are many factors that your mom's cancer team will consider when recommending treatments for breast cancer, like the tumor type, stage, size, age and previous treatments received. No two people are alike. It is possible that radiation is not appropriate at this time or that palliative radiation may be offered later if the tumor grows.
Can you tell us a bit more, if you're comfortable? Is this your mom's first diagnosis or a recurrence? Are you her main caregiver?
My mother is in stage 4 breast cancer and takes chemo but not radiation. How important is it to have radiation?
Thank you for writing I have also heard that kalispell has a great oncologist too will find out name and let you
Know blessings to you