Metastatic breast cancer: Anyone else?

So sorry to hear that news! I was on Ribociclab (Kisqali) for 18 months, the company that makes it Novartis have a program here in Canada that will pay for it if insurance won’t. Maybe see if there is similar if you are in US? It is extremely expensive and quite new and that is why insurance hesitates. Mine took a while
To agree to cover it but Novartis sent me
The medication within a few days even though we didn’t know of it would be covered, they said it was important to treat treatment then we would deal with the insurance. Please try reaching out to Novartis! Good luck, keep us posted.

No, it HAS NOT, AND I AM INTO DAY 13.
THE FIRST DRUG WAS NOT APPROVED, WHICH I CALLED OVER AND OVER TO FIND OUT
ONLY YESTERDAY, FROM SOMEONE, CALLED OLGA; THE DRUG WAS( RIBOCICOIB).
SHE SAID YESTERDAY THEY ARE TRYING TO GET ANOTHER DRUG CALLED (ABEMCICLIB}
I WILL NOT KNOW UNTIL THE END OF THE WEEK. WHY SO LONG?
I AM OVER THE MOON FRUSTRATED; SO MUCH DISCONNECT HERE IN MY CARE.
IT HAS BEEN A YEAR THAT THE PET SCAN FOUND MANY MANY NODULES IN MY LUNGS.
NOW CALLED METASTATIC BREST STAGE 4 .

Oh, that is stressful. Is the drug not approved by your insurance?

I had a mastectomy one and 1/2years ago and have had a pet scan showing that I have neuromas nodules in my lungs.
I had a biopsy on August 30, and it took that long that my cancer has returned.
It is stage 4 Metastatic breast cancer.
I had an appointment 12 days; now, they tell me today the drug the doctor wanted me on is not
approved. So they went to another medication to see if that would be authorized.
Here I am still waiting for a chemo drug to get approved,
So stressed beyond belief

@eku, oh that must be encouraging and unsettling to feel like the cancer was shrinking then "feel-able". October is just around the corner.

To find other discussions with women living with metastatic breast cancer, you can put search terms "MBC" or "metastatic breast cancer" into the Search Discussions on this page: https://connect.mayoclinic.org/discussions/all/

I think you may also appreciate this discussion group:\
- Anyone else living with breast cancer and bone metastasis? https://connect.mayoclinic.org/discussion/how-long-can-one-live-with-bone-cancer/

I just wanted to post here to include myself in the MBC group. Are there other groups discussing issues specific to MBC?

I was diagnosed in January, de novo. ER+ and HER2- and mets to bones. With the new categorization, I believe I'm in the HER2 low group. Currently on Verzenio and Anastrozole. I was premenopausal so I get monthly shots of zoladex (to shut down ovaries) and Zometa injections for bones.

For those of you who have been having this for a while, have you noticed a shrinking in your original breast tumor? Mine felt like it was shrinking but recently I feel like it's feel-able again. My next scans are in October. The previous scans were "stable".

Woo hoo! 5 of 6, I am so happy to hear you are getting through it. That you are doing so well and helping others on their journey is a healing salve to my heart.

Good morning, you all give me strength and hope.
Thanks for sharing your story and when life takes you on a detour..
It is ok to be upset and it is ok, to have to re- plan your journey and not be happy about it!
Breathe know you gave me more strength to complete my journey and watch everyday for something different.
Thank you thank you.
Chemo round 5 out of 6 tomorrow, doing well.
You are all in my thoughts

How are you doing? Any residual effects from the Covid?
Are you still able to have treatments?

Thank you Colleen for thinking about me. I will be starting chemo Friday 2/4 which will consist of Tratusumab, Herceptin & Perjeta every 3 weeks. I am not sure how many cycles.
A tumor was found in my chest wall & liver with Mets to lungs, spine, lymph nodes and mammary glands. I am in quite a bit of pain in the right thigh, right femur and right shoulder area. A lot of pain in the neck and clavicle area where the a lump is palpable.