Menningioma. Surgery vs no surgery?

Posted by whiteflag @whiteflag, Jul 6, 2023

Good or bad results after surgery.
I’m scheduled for surgery in the upcoming weeks

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Don't know, perhaps a good google search might help...good luck !

REPLY

Hey @whiteflag. I do not have a meningioma, but have a different kind of lesion in my head. In researching last year I found a guys story who helped. Check out Lake Fork Guy on YouTube. He's a professional fisherman who had a meningioma a few years back. He documented his journey pretty well, maybe it will be helpful for you? In documenting, he's very honest which i liked.

Anyway, I hope you have found the answers you need in order to move ahead with the next step of your journey and feeling better.

Sending all good wishes your way.

REPLY

Thank you. I’ll check it out

REPLY

I had menginoma tumor for many years with no growth just routine MRIs which I got very lax in doing. 13 years after being diagnosed my family doctor insisted I have an MRI. When I did I was diagnosed with amyloid angioplasty in addition to my tumor. Still no symptoms. I went to Mayo Clinic Rochester for a second opinion. They were unable to confirm the amyloid angioplasty but said my tumor had grown. Per their recommendation I had a Gamma knife procedure to try to slow ir stop the growth. Unfortunately it didn't help and the tumor continued to grow rapidly which caused me to have seizures and 2 major strokes resulting in emergency surgery. The surgery itself was not painful. I did have to have physical and occupational therapy on my left side which was affected. It has been 4 years and I still have routine MRIs to make sure there has been no regrowth.
I pray that your surgery is successful

REPLY
Please sign in or register to post a reply.