Meningioma and Chiari Malformation

I am currently here at the Mayo Clinic in Rochester, MN. I was diagnosed with a small meningioma in November of 2024. In November of 2024 I was having stroke like symptoms and had my husband take me to the ER. With the tests that was ran they found that I had a small meningioma.

Since then I have been still experiencing several symptoms that have been out of the ordinary. Headaches, balance issues, memory and cognitive issues, servere ringing in both ears 24/7, pain, numbness and tingling on left side of face feeling like someone has slapped me across the face. And several other symptoms. Also, have noticed a small inch or so in size mass under the skin on my left cheek.

I brought my records with me hoping that they would do their own MRI and testing to compare and see if it has possibly grown more.

After being evaluated I was told that due to the size and location of my meningioma that there is no way that it is what is causing my symptoms. The Dr that seen me had senior Dr come in and explain the same thing to me. Still not offering any other testing or suggestions as of to what could be causing my symptoms.

I mentioned the chiari malformation that also was discovered on a more recent MRI that is measuring 4 mm below the foramen magnum. I asked if that could be the cause of symptoms.

The senior neurologist told me " you don't have a chiari malformation." Stated that I had a miss diagnosis.

I came all this way costing me over $5,000 in plain tickets, hotel, food and missed work to be told nothing is wrong with me.

I know own my body and I know that something is not right. I'm so, so sad that I feel that this was a wasted trip, and I still have no answers.

Any advice from anyone who has experienced or is currently experiencing any of what I am going through would be greatly appreciated.