Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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amazingsw | @amazingsw | Feb 28 10:09am

In reply to @jasonl1012 "It is definitely a punch to the gut when you hear you have a brain tumor...." + (show)

What other options were you provided besides surgery? If you don’t mind me asking where was your tumor located?

amazingsw | @amazingsw | Feb 28 10:10am

In reply to @joetex "Yes, it is very stressful. I was in the hospital for another condition and a neurologist..." + (show)

I have one posted by my left optic nerve as well, I am horrified of surgery but it sounds as if it’s the only option

joetex | @joetex | Feb 28 10:51am

In reply to @amazingsw "I have one posted by my left optic nerve as well, I am horrified of surgery..." + (show)

Sorry, I should have added my neurosurgeon did Gamma knife procedure since it was close to nerve and I have had no problems at all for past 1 1/2 years.

mkoch | @mkoch | Feb 28 1:38pm

In reply to @jasonl1012 "I was referred to the first neurosurgeon by my PCP. I did not like our interaction..." + (show)

Good advice from Jason. All of this is stressful and overwhelming but finding the right doctor is the most important thing even if it takes a longer time to establish, ultimately, the best way to proceed. (That would be active surveillance, radiation, surgery, or a combination of the former two.)

stinalynn22 | @stinalynn22 | 1 day ago

In reply to @andreadiofaulks1969 "Well I had Radiation in October. Still adjusting to side effects of that. But I must..." + (show)

Hi Andrea
I know this post is a few months old but I wanted to reply to your inquiry about the Depo about because I haven't really seen that talked about too much here.
I was diagnosed in September of 2024 with a small convexity meningioma. I am on a watch and wait protocol.
I used Depo Provera for about 12 years for endometriosis and I believe that there is a strong possibility it caused my current brain tumor.
Did you use Depo? I'm 56 so I started using it way back in the 90s lol but they are still prescribing it and I have been trying to warn others to be cautious and to at least take breaks from using it. I was never told that it shouldn't be used for years at a time although I did take a few breaks.
I don't know if you are aware that there is pending litigation ( not sure if I'm allowed to mention this) to help women who have been diagnosed with a meningioma after using the birth control shot.
This is the scariest thing I have ever been through, I hope you are doing ok. Sending positive energy your way.