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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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jasonl1012 | @jasonl1012 | Nov 6, 2025
In reply to @crowley53 "@jasonl1012 , Gamma knife" + (show)
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@jasonl1012 , Gamma knife

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@crowley53
Thank you for the info. Did it stop the growth? How many sessions, and how did you feel? If you don’t mind me asking. Sorry for all the questions, I’m a bit nervous

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Colleen Young, Connect Director | @colleenyoung | Nov 5, 2025
In reply to @griffin84 "@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I..." + (show)
Profile picture for griffin84 @griffin84

@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I just read my results from the MRi myself and now I wish I hadn’t. My memory has been bad lately too. I forget words and can’t finish a thought. Would like to keep in touch with others going through this scary stuff.

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@griffin84, have you met with your doctor in the meantime? What did you find out? How are you doing?

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jasonl1012 | @jasonl1012 | Nov 5, 2025
In reply to @crowley53 "@jasonl1012 I had a molded mesh face mask." + (show)
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@jasonl1012 I had a molded mesh face mask.

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@crowley53
What type of radiation did you have?

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crowley53 | @crowley53 | Nov 5, 2025
In reply to @jasonl1012 "@crowley53 Did they have to bolt a halo on your head? I don’t want that done..." + (show)
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@crowley53

Did they have to bolt a halo on your head? I don’t want that done ever again

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@jasonl1012 I had a molded mesh face mask.

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jasonl1012 | @jasonl1012 | Nov 4, 2025
In reply to @crowley53 "@kmborromeo , Radiation is done. 5 treatments about 45 mins each start to finish. I requested..." + (show)
Profile picture for crowley53 @crowley53

@kmborromeo , Radiation is done. 5 treatments about 45 mins each start to finish. I requested mild sedation. After all the MRI's I can't handle things touching my face. The treatments easier than the MRI's. Neuro said no surgery. Finished 2 weeks ago and so far no hair loss. I am very tired.

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@crowley53

Did they have to bolt a halo on your head? I don’t want that done ever again

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crowley53 | @crowley53 | Nov 4, 2025
In reply to @kmborromeo "@crowley53 how's your radiation going? I'm also scheduled for radiation. Do you also undergo surgery before..." + (show)
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@crowley53 how's your radiation going? I'm also scheduled for radiation.

Do you also undergo surgery before radiation?

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@kmborromeo , Radiation is done. 5 treatments about 45 mins each start to finish. I requested mild sedation. After all the MRI's I can't handle things touching my face. The treatments easier than the MRI's. Neuro said no surgery. Finished 2 weeks ago and so far no hair loss. I am very tired.

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lisaj63 | @lisaj63 | Nov 3, 2025
In reply to @mkoch "@lisaj63: I had my craniotomy exactly 2 years ago at UCSF and just had a zoom..." + (show)
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@lisaj63: I had my craniotomy exactly 2 years ago at UCSF and just had a zoom video check up with the neurosurgeon who did the surgery last week. I can't say enough wonderful things about my experience. Dr. Theodosopoulos is the neurosurgeon you would want to see for a craniotomy and he also runs the gamma knife radiation clinic. During my initial consult 2 years ago, which was also a zoom visit, he went over the MRI I had digitally transferred from my local clinic (my meningioma was also discovered incidentally) gave me all the information I needed and said it was my choice. He recommended a craniotomy but he also runs the clinic that does the gamma ray procedure. Once again, can't say enough great things about my experience at UCSF. It's rated #2 in the country for neurosurgery.

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@mkoch Oh wow…I’m so glad to hear! I’ve jotted down your surgeons name for future reference if needed. Grateful to have an excellent surgeon who has ad great outcomes in my backyard! Thanks for sharing!

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dlc1953 | @dlc1953 | Nov 3, 2025
In reply to @lisaj63 "@dlc1953 Thank you so much! Can’t tell you how much I appreciate your prompt, thorough response!🙏🏽..." + (show)
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@dlc1953 Thank you so much! Can’t tell you how much I appreciate your prompt, thorough response!🙏🏽

My tumor is 1cm on the top, RT side so we shall see what the Opthomeurologist has to say. Fortunately, I’m surrounded by good teaching universities incl UCSF and. Stanford so will definitely tap into that resource.

I’m so glad your treatment went well and pray that everything continues to go well. Blessings to you!💕🙏🏽

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@lisaj63 my tumor was also the top right on my head. Good luck.

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kmborromeo | @kmborromeo | Nov 3, 2025
In reply to @crowley53 "@dollyjaneprenzel , I'm doing fine so far. Just tired after radiation. Trying to back off being..." + (show)
Profile picture for crowley53 @crowley53

@dollyjaneprenzel , I'm doing fine so far. Just tired after radiation. Trying to back off being hard on myself for not doing more at home and in the yard.

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@crowley53 how's your radiation going? I'm also scheduled for radiation.

Do you also undergo surgery before radiation?

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