Meningioma: Anyone else? I'm frightened

@jasonl1012

My goodness! That is dreadful. What an ordeal for you.
And radiation. Yes, glad the surgeon did not take that risk.

@jasonl1012 , is the tumor growing? Do you have symptoms from the leftover tumor around the Carotid?

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

@heni110 , to be truthful rather you buy it or not s your call, everyone's different and treats conditions in various ways. i kickback and think of places I've been or want to visit or just a good time, that takes some concentration to bring it up but at the same time relaxes me , trigger guards. stressing is not gonna help but hinder your progress. i I'm a recovering TBI victim of brain tumor that was cancer and cancer both at the same time plus lung cancer. no guarantees no warranty, just prayer chains and the will to live and fight for every breath. i don't know the future and todays my birthday. going to go out and have dinner with family and friends and pray i don't have another seizure along the way. but i will raise my hand and my daughter knows i need a time out to ease my mind use that trigger to put everyone at ease and not stress out. at least it helps me i turned 69 today. Loving the day even after i tore some meat from my arm again. blood thinners oh the life. have to be easier the rest of the day. good luck to you and ill say a prayer for you.

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

Jason is the one by the optic nerve gone? How many do you have and where are they located. I have 2 the one by the optic nerve. Which was radiated. My Radiologist said he would not do Radiation near the nerve even if my Neuro want to. The second is by the nerve to the RT ear..

@jasonl1012 , I'm very tired. I have great days. Yesterday I packed up almost the entire yard for winter. Today I needed fun. So, I went shopping and checked out Christmas deco. I don't need any more but I did get a few things. Remember to be good to your self. Go do something you enjoy. All this other stuff will still be there.

@jasonl1012: Down the road I may have to have radiation on one, or both, of 2 remaining meningiomas. I found this article regarding cyber knife versus gamma knife a few years back when I was trying to decide between surgery or radiation for the optic nerve meningioma I did have removed. I thought I'd post in case you, or anyone else, may be interested.
https://www.summitcancercenters.com/cyberknife-vs-gamma-knife/

Don’t stress
It doesn’t help Easier said than done
It’s going to be a long road
I’ve had three
Surgery on the first one in 2015
Radiation Therapy on the next two in 2021