Meningioma: Anyone else? I'm frightened

Background: Had meningeal tumor removed 3 1/2 years ago after silent stroke. My son took me to my primary care doctor well before that point. Doctor gave me three of those tests (that Trump passes easily) and told my son that I was “just getting older.” After my son consulted with my siblings, there was discussion of putting me into a senior facility. Luckily (!?) I had the seizure at that point, had the surgery, and within two days I was back to normal. BUT, I’m still taking generic Keppra XR (750mg 4 times daily) and Vimpat (50mg 2 times daily.) Is this a normal amount? Even after 3 1/2 years, I am still too dizzy to do much walking at all. Dizziness is a byproduct of Keppra. Anyone have a suggestion on how to approach my Neurologist on this?

Mine was diagnosed benign.
( thank God not Cancer)
However; I’m still scared. I get a lot of headaches..

I also just found out.
However from prior studies; no one told me. Yes. I was angry. I’m told it’s small and need to be monitored.
It’s been there almost 4 years..I have suffered from migraine all my life. ( the reason for the scans)

thank you
very much

Perfect response.

Stay strong. Was in shock from last April 2024-Aug 2024… was diagnosed with meningioma last Spring after experiencing severe headaches. It was big and swollen and I had tumor resection and craniotomy to remove most of it.
Surgery went fine and in Summer after a few more scans I had a small bout of radiation to simmer what was left. It was benign, but a “grade 2”. Radiation went fine. And will probably have scans every 3 to six months going forward. Hoping for no more surgeries.

doctors go off what they have seen or gone through with other patients. keep this in the back of your head. each person is different, no two alike, some close but nope not the same . fight for what you want, find a friend to go through this with you and enjoy whatever you can.. ok going to go grab a sandwich. chat again later. just message me.

my doctor thinks the same anxiety and stress levels are through the roof, if they were in my brain they would be running away from fast conclusions. and possibly get some things corrected.
well worth a try anyway. smile it makes them wonder what's on your mind. have a great afternoon going to go ride 5 miles for the exercise.

sounds like your a fighter too, i will send a quick prayer your way and feel free to chat anytime or ask a question. glad your still among us and can pass on experiences.

Your story really resonated with me and this discussion. Nine years ago, my doctor thought I was having panic attacks. And so no brain scan. Fast forward some months, my meningioma bled, a stroke. Emergency responders, a helicopter ride and emergency surgery at 3:30 am with the doctors telling my son that even with the surgery I had a 1 in 10 chance of having a meaningful life. Without it, of course, no chance. A routine although technically complex surgery was now an emergency with iffy results. Meningiomas which bled are uncommon, but some do and if they do, odds for a successful outcome are much reduced.