Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for jackie2k @jackie2k

@janeelaine I just went through it and I wish you the best. The most uncomfortable part to me was the mask but tolerable. Hugs to you

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@jackie2k Thank you, Jackie... I suspected as much. Did you have a headache afterward? The Radiologist said it would take almost an hour.

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy, I’m so happy that the radiation worked for the cancer that’s is so amazing to hear. I’m ok just still a little burning in that area but getting along good. I was freaked out when I first was told about having radiation but I was really surprised how it wasn’t that bad. Do you feel anything in your head like side affects.

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@jackie2k Actually the only thing i had was waking up with a headache but a couple like naproxen and i was good to go. the incisions for the brain surgery where they went in twice were raw longer than i cared for but hey I'm still here and happy to be alive. my caregiver is starting to take me places so i can socialize some and its made a big impact. Am hoping to start meeting people again. haven't been in that active event in like 6 years. now its time to stop and smell the roses and start doing things i should have done a long time ago. just couldn't afford to stop working at that time . i was wrong. my late wife would be chewing me out right now if she were here. funny what life hands you.

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Profile picture for Randy Shields @randallshields56

@jackie2k I had no choice had both because mine was cancerous. But radiation is what I will do if it's needed again, chemo almost took me out last time. Between what I did have and now the radiation took out the cancerous part, will have to do the 5 years testing

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@randallshields56 Hi Randy, I’m so happy that the radiation worked for the cancer that’s is so amazing to hear. I’m ok just still a little burning in that area but getting along good. I was freaked out when I first was told about having radiation but I was really surprised how it wasn’t that bad. Do you feel anything in your head like side affects.

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Profile picture for jackie2k @jackie2k

@randallshields56 hi Randy. Oh I didn’t know you had cancer and glad you’re doing good too. I have to have another MRI in six months that’s all I know .
I wish you the best Randy and keep us informed.
Jackie

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@jackie2k in about 4 weeks they do another brain mri, see the issue I have right now and go from there. Thank you for your post 📫 🙏 I'm still cancer free, just hope the tumors not back or something like that. Ok chat tomorrow, have councilor at 9am eastern time 🙄

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Profile picture for janeelaine @janeelaine

Yes. My stage two meningioma suddenly grew. It is pressing on my frontal lobe and midline. I have an appointment with my neurosurgeon and radiology oncologist to undergo a gamma knife procedure at Northwestern Hospital in April. Wish me luck. Jane

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@janeelaine:Why was gamma knife chosen to treat the tumor rather than a craniotomy?

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Profile picture for Randy Shields @randallshields56

@jackie2k I had no choice had both because mine was cancerous. But radiation is what I will do if it's needed again, chemo almost took me out last time. Between what I did have and now the radiation took out the cancerous part, will have to do the 5 years testing

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@randallshields56 hi Randy. Oh I didn’t know you had cancer and glad you’re doing good too. I have to have another MRI in six months that’s all I know .
I wish you the best Randy and keep us informed.
Jackie

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Profile picture for janeelaine @janeelaine

Yes. My stage two meningioma suddenly grew. It is pressing on my frontal lobe and midline. I have an appointment with my neurosurgeon and radiology oncologist to undergo a gamma knife procedure at Northwestern Hospital in April. Wish me luck. Jane

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@janeelaine I just went through it and I wish you the best. The most uncomfortable part to me was the mask but tolerable. Hugs to you

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Profile picture for jackie2k @jackie2k

@randallshields56 Good Morning! And thanks for the reply and that’s interesting I’m just interested to know if I made the right decision of radiation versus surgery.
What you think

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@jackie2k I had no choice had both because mine was cancerous. But radiation is what I will do if it's needed again, chemo almost took me out last time. Between what I did have and now the radiation took out the cancerous part, will have to do the 5 years testing

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Yes. My stage two meningioma suddenly grew. It is pressing on my frontal lobe and midline. I have an appointment with my neurosurgeon and radiology oncologist to undergo a gamma knife procedure at Northwestern Hospital in April. Wish me luck. Jane

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Profile picture for Randy Shields @randallshields56

@jackie2k he's just gone through the first stages of after surgery. Sleeping essentials and groggy, but talking is still hard. I'll give him a week. Will let you know.

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@randallshields56 Good Morning! And thanks for the reply and that’s interesting I’m just interested to know if I made the right decision of radiation versus surgery.
What you think

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