Meningioma: Anyone else? I'm frightened

Hopefully the neurologist will be johnny-on-the-spot about referring you to a neurosurgeon. A neurologist specializes in treating disorders of the brain like epilepsy, Parkinson's, etc. A meningioma ( a tumor that is benign 97% of the time) is the specialty of a neurosurgeon. I wouldn't trust anyone else's opinion with regard to waiting to see if it grows, radiating it, or removing it. There are lots of good posts about meningiomas on this forum. Click on some of the back pages of posts.

I’ve been having headaches and MRI shows that I have a small meningioma. I’m frightened regardless of the size. My doctor has referred me to a neurologist. I’m so worried.

I’ve been having headaches and MRI shows that I have a small meningioma. I’m frightened regardless of the size. My doctor has referred me to a neurologist. I’m so worried.

I had one in April 2022. I understand every person’s results are different. Benign meningioma was successfully removed. I woke up with drop foot and possibly neuropathy. My sister, an RN, suggested possibly that restraints on arms/legs surgery were not routinely loosened and retightened. For blood flow. I guess I would make that a point to doctor. Be your best advocate.

Thanks for sharing

I just got the news and I’m just seeing how others are doing with a tumor

Yes, I had a meningioma. I first noticed something was not right with my vision in summer of 2007. My left eye was seeing thing 'too bright' .I could have worn sunglasses with right lens removed. My ophthalmologist thought is was just 'dry eyes' and to come back in 2 months if no improvement. Next visit , I did a 'field of vision' test and found the bottom left quadrant was extremely diminished. 'More eye drops were needed' was the prescription.
In January, I could smell a natural gas leak in my house. The gas company inspector came right over but could find nothing leaking. I went out to the library and grocery store. Yes, I could smell nature gas leak in both of them. I knew the whole city was going to explode.
Next visit in February, I suggested an MRI. "No, No. No, That's too expensive. It must be 1 of the 1643 diseases of the eye". I got an MRI. the following week on "Hypochondriac's Night". I came out of the MRI and there were 6 doctors there to hold my hand. '"Don't worry about a thing son, It will take a month for a radiologist to read it and another month for your doctor to get back to you". That night , in bed, in the dark, with my eyes closed, I noticed light in my left eye as if I had left a light on in the house somewhere. That was the tumor pressing on the optic nerve. Next morning, the phone is ringing at 8 am. It's the ophthalmologist's office wanting me to come in for a little discussion . The news was that I had a tumor, and to see a surgeon. After lunch , a surgeon phoned and wanted to meet, NOW. The doctor who had done over 700 of these types said that is must come out. They bumped everyone on the surgery list for me . The doctor said "be to the hospital by 7:30 am. -In by 8, out by noon.". By 4 pm my other have was worried, and phone the hospital. The surgeon said that the tumor was big, hard as wood and full of veins. They finished at midnite,16 hours and only got half of it. They told me to book another surgery in a month. It took 10 months to get back in for another 16 hour surgery due to patients
having more serious needs that me. The tumor ate through my olfactory nerve so I can't smell or taste anything.
That's what causes the sensation of 'nature gas leak'. Others report a smell of burnt toast. I still have a residual tumor , slow growing. There's lots of room for it to grow . They said "Your tumor was bigger than a golf ball , small than a tennis ball". My 'field of vision' tests still show the diminished left eye. Moral of story, Get an MRI if you've got a medical problem that isn't getting better. Doctors are only human and they make mistakes, too.

Hi I had one removed two years ago April 18th. It was successful with some minor defects. What size is your? Where is it located? Do you currently have symptoms from it? How did they find it? Do you have a neurologist? Is it going to be removed? Mine was rather large & was causing lots of major problems & disrupting my daily quality of life when I wasn’t sleeping 20/22 hours a day. My surgery was successful with a few permanent defects.