Meningioma: Anyone else? I'm frightened

Does a craniotomy require a lot of time to heal?

Welcome to the group today and, just going to give you my opinion from
past experience. Im 68 and last year was diagnosed with cancer in the lung
and a brain tumor that was cancerous. The lung scans over a period of time
went unchecked instead of every 6 months. I let it go until the dots in my
lung had one break loose and went to my brain. Needless to say that mass
grew until it dropped me. And here I am, scans every 3 months on chest,
stomach and pelvis, every 6th month one of the brain. The emergency
surgery and radiation treatments with chemotherapy mix got rid of the
cancer. That was last march and April. Still have no cancer back but wish
I would have stuck with the 6th months check up. Maybe they could have
headed this off at the start. Hope this helps you.

A craniotomy? Maybe they can remove it with just a drill hole if it’s small enough

No change sounds great! I hope that’s what mine says.

I go for my third MRI in November. The first two showed no change. My question is, if they ever have to do surgery to remove the meningioma, how do they do that? I asked the doctor and he said since my meningioma is on my side of my head above my left ear they would drill a hole in my skull to get to that. Has anyone ever heard or had experience with that? I don't know what that is called.

I had a similar diagnosis about 4 years ago. I've had 3 MRIs since then - the last just yesterday - July 30. I'm speaking with my doctor tomorrow. The report says no change. I'm 77. I have no symptoms but of course I'm worried.

bonjour oui moi aussi suite a un irm meningiome mais generalement benin mais le probleme juste rique parkinson ou eihzemer donc je connais 2 personnes operees tout c est bien passe et ils n ont aucun soucis courage a vous l inconnu fait toujours peur moi aussi

God Bless you. You have been through so much. May you continue to live without having to do more chemo and radiation. We can only address one problem at a time in fighting this battle. I hope and pray all the procedures you’ve been through help you live as best you can.

Hello edeval4,

After regular surgery, radiation and chemotherapy, I went with the gamma knife procedure. I had researched the procedure and was satisfied with the risks. I did not research proton therapy. After the gamma knife procedure, I have continued with the post-surgery chemotherapy and just finished month 5 of 1 a day for 5 days of chemotherapy. I will complete my 6 months of therapy in early July. I'm not sure what will be next after completing current therapy. I have some setbacks but still living. Hopefully you will continue with your process and pray to God for help.

You as well! I did research proton therapy as well. My NS told me gamma knife is more effective in pinpointing the tumor. From what I read, I told him proton therapy is supposed to pinpoint the precise location as well. He said if you believe the media hype!?!?!?! What is one suppose to think. It’s scary as hell but I don’t want it to continue growing and cause stroke, blindness, paralysis, etc… I have to leave it in God’s hands now. 🙏🏼