Meningioma: Anyone else? I'm frightened

A craniotomy? Maybe they can remove it with just a drill hole if it’s small enough

No change sounds great! I hope that’s what mine says.

I go for my third MRI in November. The first two showed no change. My question is, if they ever have to do surgery to remove the meningioma, how do they do that? I asked the doctor and he said since my meningioma is on my side of my head above my left ear they would drill a hole in my skull to get to that. Has anyone ever heard or had experience with that? I don't know what that is called.

I had a similar diagnosis about 4 years ago. I've had 3 MRIs since then - the last just yesterday - July 30. I'm speaking with my doctor tomorrow. The report says no change. I'm 77. I have no symptoms but of course I'm worried.

bonjour oui moi aussi suite a un irm meningiome mais generalement benin mais le probleme juste rique parkinson ou eihzemer donc je connais 2 personnes operees tout c est bien passe et ils n ont aucun soucis courage a vous l inconnu fait toujours peur moi aussi

God Bless you. You have been through so much. May you continue to live without having to do more chemo and radiation. We can only address one problem at a time in fighting this battle. I hope and pray all the procedures you’ve been through help you live as best you can.

Hello edeval4,

After regular surgery, radiation and chemotherapy, I went with the gamma knife procedure. I had researched the procedure and was satisfied with the risks. I did not research proton therapy. After the gamma knife procedure, I have continued with the post-surgery chemotherapy and just finished month 5 of 1 a day for 5 days of chemotherapy. I will complete my 6 months of therapy in early July. I'm not sure what will be next after completing current therapy. I have some setbacks but still living. Hopefully you will continue with your process and pray to God for help.

You as well! I did research proton therapy as well. My NS told me gamma knife is more effective in pinpointing the tumor. From what I read, I told him proton therapy is supposed to pinpoint the precise location as well. He said if you believe the media hype!?!?!?! What is one suppose to think. It’s scary as hell but I don’t want it to continue growing and cause stroke, blindness, paralysis, etc… I have to leave it in God’s hands now. 🙏🏼

That is what I’m afraid of! The radiation causing cancer later. They want to do gamma knife, but Mayo said Proton therapy. When I looked into them I found literature stating there was a lower risk of it causing cancer, so why did they want me to do gamma knife? The only explanation I got was that it’s precise and effective. I don’t know. It’s a difficult thing to deal with. I wish you well!

When did your headaches and dizziness start after sterotactic radio surgery? Was it months later or right away??