Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for kob @kob

There is a 0.9 x 0.6 x 0.4 cm elliptical enhancing extra-axial nodule over the left anterior frontal lobe compatible with small meningioma. Additionally there is a low T1/T2 likely sclerotic right frontal skull lesion with adjacent T1 hyperintense mineralization measuring 1.1 x 1.3 x 1.5 cm over the lateral right frontal lobe without underlying parenchymal signal abnormality. No hemorrhage, mass effect or edema.

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Eight years ago I had a meningioma which bled ( they usually don’t) and I underwent emergency surgery. I just got the good results of my current followup MRI. The tumor is still gone in spite of being a stage 2 tumor according to the WHO. Thank God. So these things are survivable but must be taken seriously.

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I had a golf ball sized benign one removed from my left front in 2021. Didn’t even really know I had it until I had a ‘silent stroke.’ Thank heavens the dog kept barking at me until my son found me. The day after surgery, I felt 1000 times better. Truly Miraculous, as you’ll see.
Taking Generic Keppra and Vimpat which cause some balance problems, but who really cares? Better than the alternative.
Everyone’s thoughts are with you. You’ll be okay.

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I was diagnosed with Meninginoma in September 2024. I was also frightened. I didn’t know what to expect or how to except this.

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I’m waiting for an appointment with the neurosurgeon.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@kob, how are you doing? Do you know the size of the meningioma? What treatment options are being considered for you?

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There is a 0.9 x 0.6 x 0.4 cm elliptical enhancing extra-axial nodule over the left anterior frontal lobe compatible with small meningioma. Additionally there is a low T1/T2 likely sclerotic right frontal skull lesion with adjacent T1 hyperintense mineralization measuring 1.1 x 1.3 x 1.5 cm over the lateral right frontal lobe without underlying parenchymal signal abnormality. No hemorrhage, mass effect or edema.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@triciax, I'm glad the meningioma was discovered early and it is not causing symptoms so that your treatment option can be watch and wait. I prefer the term active surveillance I should add since for me it implies a more "active" approach and acknowledges that changes are being monitored.

When was your meningioma discovered? How often do you have followup scans?

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Thank you, Colleen. I like "active surveillance." It was discovered about a years ago. One rescan after 6 months. Another one in 6 months. even though it is barely growing ..

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Profile picture for triciax @triciax

I had the same unwanted news. I had a bassline MRI to see if, after looking at so many other possible causes, my frequent lightheadedness had a neural basis. No problem there (and my lightheadedness has since stopped) BUT there was a meningioma the size of a kidney bean. It's not causing any problems now, and I am old so it's on watch status. I felt lucky, as you, to have discovered it early by accident. I have 2 friends who did not discover this problem until they had very serious symptoms. They were the size of fists! They are almost always benign and slow growing. So please worry less.

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@triciax, I'm glad the meningioma was discovered early and it is not causing symptoms so that your treatment option can be watch and wait. I prefer the term active surveillance I should add since for me it implies a more "active" approach and acknowledges that changes are being monitored.

When was your meningioma discovered? How often do you have followup scans?

REPLY
Profile picture for kob @kob

Intraosseous meningioma confirmed by MRI. It is my frontal lobe of the
scull bone

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@kob, how are you doing? Do you know the size of the meningioma? What treatment options are being considered for you?

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I know it can be scary hearing the words brain tumor. I found out 2019 due to symptoms I was having with my vision, they reassured me my symptoms had nothing to do with mine. It wad monitored for a few yrs then treated with gamma knife. Each is different as is treatment. I also recently found out ai have a second one and waiting for mire details.. funny enough this was present since 2017 and they did not mention it to me and it could be the one causing my vision issues.
Try not to panic (i know it's hard not) keep us updated and stay positive. They are most of the time benign and treatable.

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Profile picture for kob @kob

Week ago my CT scans ( done because of sinuses issues ) were revealed and 2 cm big meningioma, detected on my right frontal lobe. I’m waiting for my MRI appointment. It is the most terrifying information that I am not sure how it handled.

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Intraosseous meningioma confirmed by MRI. It is my frontal lobe of the
scull bone

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