Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Yes most if not all are benign. Stay connected with your neurosurgeon and your M.D

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Profile picture for Maryann @mkoch

OK, thank you for your reply. I'm always trying to collect as much information as I can and I especially value first hand accounts from people who have experienced a particular medical procedure.

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Right

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Profile picture for andreadiofaulks1969 @andreadiofaulks1969

Very tired, I still be a little confused at times, my balance get a little off, headaches and I be sleepy throughout the day. But I was told those can be done side effects. But I do have my good day as to where I don’t have any side effects and I take full advantage of those.

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OK, thank you for your reply. I'm always trying to collect as much information as I can and I especially value first hand accounts from people who have experienced a particular medical procedure.

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Was diagnosed earlier this year. Went through radiation for it.

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Profile picture for mary963 @mary963

Hello, my name is Mary. I am 51y female. I was diagnosed with a meningioma this past year. I am about to have my second mri in January. Do you know where I can find more information on symptoms and treatment. The doctor I have gone to hasn't even shown me EXACTLY where I have this in my head. I tried looking for information myself but it is not very clear. Any information would be really helpful.
Thanks

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I went to two doctors to make sure this was what i was dealing with, and both doctors (in totally different cities) told and showed me exactly where this was. Ask your doctor who did the MRI or your neurosurgeon.

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Profile picture for Maryann @mkoch

Andrea, I am on watch-and-wait protocol for 2 meningiomas. I have been told that if they continue growing to the point that something needs to be done it will be radiation. So, I am wondering, what are the side effects from radiation that you received in October that you are still adjusting to?

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Very tired, I still be a little confused at times, my balance get a little off, headaches and I be sleepy throughout the day. But I was told those can be done side effects. But I do have my good day as to where I don’t have any side effects and I take full advantage of those.

REPLY

Hello, my name is Mary. I am 51y female. I was diagnosed with a meningioma this past year. I am about to have my second mri in January. Do you know where I can find more information on symptoms and treatment. The doctor I have gone to hasn't even shown me EXACTLY where I have this in my head. I tried looking for information myself but it is not very clear. Any information would be really helpful.
Thanks

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Profile picture for andreadiofaulks1969 @andreadiofaulks1969

Well I had Radiation in October. Still adjusting to side effects of that. But I must stay strong and think positive. Is your Meningioma due to the Depo Provern shot?

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Andrea, I am on watch-and-wait protocol for 2 meningiomas. I have been told that if they continue growing to the point that something needs to be done it will be radiation. So, I am wondering, what are the side effects from radiation that you received in October that you are still adjusting to?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@andreadfaulk69, it's hard to accept a new diagnosis, especially a tumor in your brain, even if it is benign. Yikes. How are you doing now 3 months since diagnosis? Are you on active surveillance (watch and wait)?

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Well I had Radiation in October. Still adjusting to side effects of that. But I must stay strong and think positive. Is your Meningioma due to the Depo Provern shot?

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Profile picture for andreadfaulk69 @andreadfaulk69

I was diagnosed with Meninginoma in September 2024. I was also frightened. I didn’t know what to expect or how to except this.

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@andreadfaulk69, it's hard to accept a new diagnosis, especially a tumor in your brain, even if it is benign. Yikes. How are you doing now 3 months since diagnosis? Are you on active surveillance (watch and wait)?

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