Meningioma: Anyone else? I'm frightened

Hi I had one removed two years ago April 18th. It was successful with some minor defects. What size is your? Where is it located? Do you currently have symptoms from it? How did they find it? Do you have a neurologist? Is it going to be removed? Mine was rather large & was causing lots of major problems & disrupting my daily quality of life when I wasn’t sleeping 20/22 hours a day. My surgery was successful with a few permanent defects.

I had Gamma Ray surgery in 2018 and have had no problems since. I do have an MRI every 2 years to make sure it hasn't grown. The surgery is like an MRI with no pain.
Good luck

I was diagnosed with a meningioma in 2011 and have only had it monitored in all these years. Met with the neurologist after another brain scan to find it’s grown a lot. It’s now 24mm & is of the fossa posterior. I’ve been referred to neurosurgeons now but for radiation therapy. If anyone has had such therapy could you kindly tell me the process. Thanks & good luck

Drs. discovered I had a meningioma in 2018 and I was sent to a surgeon who did Gamma Ray Surgery to keep it from growing. I had to have an MRI every year for a few years and now it's every 2 years. The Surgery was like having an MRI and I have had no problems since then. Once it hits a certain size they can't do Gamma surgery. I would ask your doc if he or she could or would suggest Gamma. From my research, I know they do grow slowly but...

Whoops-was reading our exchange and my husband corrected me. My meningioma was 2.7 centimeters, not millimeters. My neurosurgeon also specializes in meningiomas. I am glad to hear you will be taking care of this at Duke University. You're in good hands.

@mkoch Thank you for your reply. That gives me hope. Next week I have an appointment with a neurosurgeon at Duke University Hospitals- about three hours from my house. Duke is considered one of the top hospitals for neurosurgery and the surgeon I’m seeing for the consult specializes in meningiomas. I am hopeful that he’ll say the same thing your doctor said. Thanks again.

Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma that was 1/16 th of an inch from my optic nerve. The neurologist that I first consulted when the meningioma was found incidentally during a scan for something else referred me to a radiation oncologist as I was told it was too close to my optic nerve to do surgery. The radiation oncologist agreed. My daughter insisted I go to UCSF and talk to a neurosurgeon.
He said, "No problem, I do one or two a week." (specifically that close to the optic nerve)
The surgery was successful; the entire meningioma was removed.
The surgery was much easier than I had ever imagined. I was home on the third day. Except for the pain med given during surgery, I only took tylenol. One drawback was that I did have double vision for 3 1/2 months after my surgery. But, that resolved and I am doing well. I might add that it is imperative that you receive care at a top notch neurosurgical center.

Hi, I just found out two weeks ago that I have a meningioma on my right optic nerve. It’s 1 cm. I have an appointment with a neurosurgeon next week to determine a treatment plan. I have some vision loss which seems unlikely to return, even with surgery. I’m scared but trying to be positive- unlikely to be cancerous, very healthy otherwise, etc.

"Purple Turtle" were the strokes because of the meningioma being there?

Yes unfortunately they did.