Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for Randy Shields @randallshields56

@heni110 , to be truthful rather you buy it or not s your call, everyone's different and treats conditions in various ways. i kickback and think of places I've been or want to visit or just a good time, that takes some concentration to bring it up but at the same time relaxes me , trigger guards. stressing is not gonna help but hinder your progress. i I'm a recovering TBI victim of brain tumor that was cancer and cancer both at the same time plus lung cancer. no guarantees no warranty, just prayer chains and the will to live and fight for every breath. i don't know the future and todays my birthday. going to go out and have dinner with family and friends and pray i don't have another seizure along the way. but i will raise my hand and my daughter knows i need a time out to ease my mind use that trigger to put everyone at ease and not stress out. at least it helps me i turned 69 today. Loving the day even after i tore some meat from my arm again. blood thinners oh the life. have to be easier the rest of the day. good luck to you and ill say a prayer for you.

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@randallshields56 hi
Take one day at a time
My treatment been going on for over ten years surgery radio therapy still don’t know if I’m clear
Still trying to control the mood swings the memory a pile crap
But I can live with all of this my wife been an absolute rock given up thinking about tumours the stress doesn’t help tomorrow another day
Hope your doing well and in good space

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Profile picture for crowley53 @crowley53

@jasonl1012 , is the tumor growing? Do you have symptoms from the leftover tumor around the Carotid?

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Jason, How did they find your tumor?

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Profile picture for Dolly Jane @dollyjaneprenzel

@jasonl1012

My goodness! That is dreadful. What an ordeal for you.
And radiation. Yes, glad the surgeon did not take that risk.

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@dollyjaneprenzel
He said I will have to have at some point. It all depends on the MRI and how much it’s growing

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Profile picture for crowley53 @crowley53

@jasonl1012 , is the tumor growing? Do you have symptoms from the leftover tumor around the Carotid?

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@crowley53
I have an MRI soon to see. It’s the one year after surgery MRI

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Profile picture for jasonl1012 @jasonl1012

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

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@jasonl1012

My goodness! That is dreadful. What an ordeal for you.
And radiation. Yes, glad the surgeon did not take that risk.

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Profile picture for Randy Shields @randallshields56

@heni110 , to be truthful rather you buy it or not s your call, everyone's different and treats conditions in various ways. i kickback and think of places I've been or want to visit or just a good time, that takes some concentration to bring it up but at the same time relaxes me , trigger guards. stressing is not gonna help but hinder your progress. i I'm a recovering TBI victim of brain tumor that was cancer and cancer both at the same time plus lung cancer. no guarantees no warranty, just prayer chains and the will to live and fight for every breath. i don't know the future and todays my birthday. going to go out and have dinner with family and friends and pray i don't have another seizure along the way. but i will raise my hand and my daughter knows i need a time out to ease my mind use that trigger to put everyone at ease and not stress out. at least it helps me i turned 69 today. Loving the day even after i tore some meat from my arm again. blood thinners oh the life. have to be easier the rest of the day. good luck to you and ill say a prayer for you.

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@randallshields56
Happy Birthday to you. You have had a hard road. Sending blessings.

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Profile picture for jasonl1012 @jasonl1012

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

Jump to this post

@jasonl1012 , is the tumor growing? Do you have symptoms from the leftover tumor around the Carotid?

REPLY
Profile picture for jasonl1012 @jasonl1012

@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

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@jasonl1012 , sounds like mine.

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Profile picture for crowley53 @crowley53

Jason is the one by the optic nerve gone? How many do you have and where are they located. I have 2 the one by the optic nerve. Which was radiated. My Radiologist said he would not do Radiation near the nerve even if my Neuro want to. The second is by the nerve to the RT ear..

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@crowley53
I had one large one that went from my optic nerves, partially wrapped around the right one, down, pressing on the pituitary gland, which was pushing it to the side, and back to my internal carotid arteries and wrapped around one of them. The surgeon said he was able to tease it off the Optic nerve and away from the pituitary gland and removed all except of a cuff of tissue around the internal carotid arteries. He said messing with the internal carotid arteries was way too dangerous. He said if he nicked it there’s no way to stop the bleeding and you die. So now I have to go back and have radiation for the residual tumor. it sucks. I wish he could’ve gotten all of it, but I understand how dangerous that could be.

REPLY
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