Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Some great people are ready to step up and help you alongside you and give you support, count me in too, prayer groups and prayer chains help emmensly. Have a blessed day and try best to relax some, stress doesn't help, with me I get a headache. You're in good company here.

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I'm in the sa.e boat as you and very scared. I have looked up e every thing I can find on the internet not sure this is a good thing. I have an appointment on December the 10th. Iam finding a lot of peace in prayer

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Profile picture for Dolly Jane @dollyjaneprenzel

@randallshields56
Happy Birthday to you. You have had a hard road. Sending blessings.

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@dollyjaneprenzel thank you so much, started out normal day and went to a very good evening.

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Profile picture for Dolly Jane @dollyjaneprenzel

@randallshields56
Happy Birthday to you. You have had a hard road. Sending blessings.

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Thank you so much 💓

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Profile picture for heni110 @heni110

@randallshields56 hi
Take one day at a time
My treatment been going on for over ten years surgery radio therapy still don’t know if I’m clear
Still trying to control the mood swings the memory a pile crap
But I can live with all of this my wife been an absolute rock given up thinking about tumours the stress doesn’t help tomorrow another day
Hope your doing well and in good space

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Thank you for sharing, im actually stable for now, trying and fighting to
live every day.

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Profile picture for Maryann @mkoch

@carlvcjr: When you notified your doctor that you were now using a walker, but more importantly that you had a seizure, and this happening 8 months post surgery, did he/she order a repeat MRI to take a look/see? With those new symptoms ( needing a walker-seizure) I wouldn't settle for being told things "should reconcile in time" unless another MRI was done to rule out anything new.

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@mkoch
Lots of scans, etc were done while I was in the hospital. Apparently the scar tissue from the meningioma surgery triggered the seizure. My GP has ordered scans of my spine because it is possible that the bulging discs at L4/5 and L5- S1 are putting pressure on the nerves. Hence the increasing numbness and weakness.
Thanks

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Profile picture for carlvcjr @carlvcjr

I had meningioma surgery nine months ago. The tumor was half the size of a cue ball, for reference. I had no symptoms other than increasing weakness ( I had lost nearly 50 pounds and was exercising daily). I was on a high dose of mounjaro for my type 2 diabetes and my A1C was 6.1 at that point. My surgery went very well and I only spent 1 night in ICU and I night in the hospital. I had been an accomplished pianist but the surgery left me unable to play with my left hand. After months of intense practicing I am once again able to play but not at the level of consistency I used to have. I am still experiencing extreme weakness on my left side in particular and have had to start using a walker over the past several weeks. I'm very frustrated at this point. I had my first ever seizure a month ago and now can't drive. I'm sorry for the essay but wonder if anyone else has experienced anything similar. The doctors keep saying that this should reconcile in time

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@carlvcjr: When you notified your doctor that you were now using a walker, but more importantly that you had a seizure, and this happening 8 months post surgery, did he/she order a repeat MRI to take a look/see? With those new symptoms ( needing a walker-seizure) I wouldn't settle for being told things "should reconcile in time" unless another MRI was done to rule out anything new.

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I had meningioma surgery nine months ago. The tumor was half the size of a cue ball, for reference. I had no symptoms other than increasing weakness ( I had lost nearly 50 pounds and was exercising daily). I was on a high dose of mounjaro for my type 2 diabetes and my A1C was 6.1 at that point. My surgery went very well and I only spent 1 night in ICU and I night in the hospital. I had been an accomplished pianist but the surgery left me unable to play with my left hand. After months of intense practicing I am once again able to play but not at the level of consistency I used to have. I am still experiencing extreme weakness on my left side in particular and have had to start using a walker over the past several weeks. I'm very frustrated at this point. I had my first ever seizure a month ago and now can't drive. I'm sorry for the essay but wonder if anyone else has experienced anything similar. The doctors keep saying that this should reconcile in time

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Profile picture for mono21 @mono21

@dollyjaneprenzel Hi,
Good luck. I went to Mayo in September and the doctor said my Meningioma needs to come out. I’m flying out of Albuquerque on Sunday to Mayo. Surgery is Wednesday. I’m kinda scared.

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@mono21 I understand. I would be scared too. Good luck and Godspeed. Let us know.

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Yes I had one in September. My Meningioma has grown and I’m having surgery on Wednesday. I’m scared.
Make sure you ask plenty of questions. Good luck.

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