Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for mbaxter @mbaxter

I had a meningioma removed at Mayo in 2007 when I was 63. They thought it would be benign but was a Who Grade 2. They wanted to do radiation as they thought it would grow back as cancer. I said no. It took me a few years to get "it together" but am now doing well. My EX husband was not supportive and left after a year when I still had difficulty walking and thinking well as my brain was still inflamed. But now I'm enjoying life much more. I was lucky as my meningioma was in my right frontal cortex and mostly effected my left side and balance rather than vision or memory.

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Wow! Your an inspiration and your ex is a jerk. You are very willed. I'm so happy to hear that your well now. I find it comforting when I hear success stories. I'm just starting this Journey

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I had a meningioma removed at Mayo in 2007 when I was 63. They thought it would be benign but was a Who Grade 2. They wanted to do radiation as they thought it would grow back as cancer. I said no. It took me a few years to get "it together" but am now doing well. My EX husband was not supportive and left after a year when I still had difficulty walking and thinking well as my brain was still inflamed. But now I'm enjoying life much more. I was lucky as my meningioma was in my right frontal cortex and mostly effected my left side and balance rather than vision or memory.

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Thanks! Reduces my anxiety.

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Profile picture for dollyjaneprenzel @dollyjaneprenzel

Thanks for the info. Noise prevents me from going to the movies so I am anxious!

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They give you earplugs. Maybe they might have headphones for music

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Profile picture for dollyjaneprenzel @dollyjaneprenzel

Young age? 🥹 I doubt they would do surgery at 79!
Given my headaches, this should probably have been investigated fully a year ago. Thanks for being in touch. Keep us posted and I will do the same.

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Ok. Its good to know someone who understands. And you are 79 years young

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Profile picture for poofy @poofy

Mine was found through a MRI. Don't worry about getting one. The worst part is its very loud. You neecd ear plugs. They put something that looks like a basket over your face so they can center you in the machine and you don't move. The contrast in an IV. when it goes in you feel a warm flash through your body. and that's it. Piece of cake

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Thanks for the info. Noise prevents me from going to the movies so I am anxious!

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Profile picture for poofy @poofy

My goodness Dolly, you been through a lot. Would they do surgery at your young age? I'm 67 and was just diagnosed last week.

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Young age? 🥹 I doubt they would do surgery at 79!
Given my headaches, this should probably have been investigated fully a year ago. Thanks for being in touch. Keep us posted and I will do the same.

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Mine was found through a MRI. Don't worry about getting one. The worst part is its very loud. You neecd ear plugs. They put something that looks like a basket over your face so they can center you in the machine and you don't move. The contrast in an IV. when it goes in you feel a warm flash through your body. and that's it. Piece of cake

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Profile picture for dollyjaneprenzel @dollyjaneprenzel

It was found when I was in hospital for concussion after four falls on one day in Jan. 2024. I am 79.
The growth was spotted then by MRI.
Next I saw a neurosurgeon who was not concerned as it was very small.
I have had headaches from the falls and have been diagnosed with PTSD.
In two weeks I will have a MRI with contrast.
Thank you for your interest and concern.
Dolly

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My goodness Dolly, you been through a lot. Would they do surgery at your young age? I'm 67 and was just diagnosed last week.

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Profile picture for may04tamtam @may04tamtam

Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare the damage to my optic nerve and vision. It had grown wrapped around my optic nerve sheath, so the doctors wouldn’t even biopsy it, much less perform surgery to remove it. I ended up undergoing 28 daily radiation treatments to kill the tumor. It did not restore my vision, but it is not currently growing. For reference, I was 55 when diagnosed.

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I was just diagnosed with a meningioma brain tumor last week. I'm freaking out a little. I saw that you had trouble with you vision. My vision has gotten really bad really fast. I don't know if were the same but can you describe what you see. I can't see at night. All the lights look like fire works. Its awful and pretty at the same time. My memory is also bad. I can't remember the name of things. And sometimes I lose my train of thought at the end of a sentence. I'm scared too

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