Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for Randy Shields @randallshields56

i try to get out and walk as often as i can weather permitting. you are an inspiration to others well back to exercises. chat later.

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@randallshields56 hi Randy! I’m so glad you are a fighter also. We are the type that survive.

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i try to get out and walk as often as i can weather permitting. you are an inspiration to others well back to exercises. chat later.

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Profile picture for Randy Shields @randallshields56

@jackie2k peas in a pod, thank you for the post. It's been a long week already and not over yet. I love your style of chatting with me. Here is hoping you have a blessed evening and chat whenever I see you message.

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@randallshields56 hey Randy! Thanks for chatting with me too it’s just good to hear that someone knows what it feels like to have to go through a tuff time. I had ADEM and it took me months to get over it I was paralyzed on my whole right side and had to learn how to walk talk and swallow again but now I try to walk 3 miles a day snd garden.

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy! I have short term memory lost also. Not sure what’s causing it other than age . Hope you’re doing ok.

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@jackie2k peas in a pod, thank you for the post. It's been a long week already and not over yet. I love your style of chatting with me. Here is hoping you have a blessed evening and chat whenever I see you message.

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Profile picture for Randy Shields @randallshields56

@jackie2k Thank you for the like. have a blessed day.
as to side effects I'm still working on that part. my meds cut off a lot of my short term memory. but hey still here and god must need me around to help someone. have a great day.

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@randallshields56 Hi Randy! I have short term memory lost also. Not sure what’s causing it other than age . Hope you’re doing ok.

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Profile picture for janeelaine @janeelaine

@jackie2k Thank you, Jackie... I suspected as much. Did you have a headache afterward? The Radiologist said it would take almost an hour.

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@janeelaine yeah i had a headache too. it passed with meds and rest. the incisions took the longest time to heal. but they had to go back into my brain to repair a bleeder a couple weeks later. that bit.

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy, I’m so happy that the radiation worked for the cancer that’s is so amazing to hear. I’m ok just still a little burning in that area but getting along good. I was freaked out when I first was told about having radiation but I was really surprised how it wasn’t that bad. Do you feel anything in your head like side affects.

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@jackie2k Thank you for the like. have a blessed day.
as to side effects I'm still working on that part. my meds cut off a lot of my short term memory. but hey still here and god must need me around to help someone. have a great day.

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Profile picture for Maryann @mkoch

@janeelaine:Why was gamma knife chosen to treat the tumor rather than a craniotomy?

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@mkoch I told the Neurosurgeon that I would almost rather have it just gone (!) and he thought for a minute, but then said this was the best way. I trust he is right. I have monitored multiple small tumors for a number of years, but this one suddenly grew.

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Profile picture for jackie2k @jackie2k

@janeelaine I just went through it and I wish you the best. The most uncomfortable part to me was the mask but tolerable. Hugs to you

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@jackie2k Thank you, Jackie... I suspected as much. Did you have a headache afterward? The Radiologist said it would take almost an hour.

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Profile picture for jackie2k @jackie2k

@randallshields56 Hi Randy, I’m so happy that the radiation worked for the cancer that’s is so amazing to hear. I’m ok just still a little burning in that area but getting along good. I was freaked out when I first was told about having radiation but I was really surprised how it wasn’t that bad. Do you feel anything in your head like side affects.

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@jackie2k Actually the only thing i had was waking up with a headache but a couple like naproxen and i was good to go. the incisions for the brain surgery where they went in twice were raw longer than i cared for but hey I'm still here and happy to be alive. my caregiver is starting to take me places so i can socialize some and its made a big impact. Am hoping to start meeting people again. haven't been in that active event in like 6 years. now its time to stop and smell the roses and start doing things i should have done a long time ago. just couldn't afford to stop working at that time . i was wrong. my late wife would be chewing me out right now if she were here. funny what life hands you.

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