Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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elisabeth007 | @elisabeth007 | May 31 11:31am

i have a meningoma that was found on an MRI about 8 years ago. i have had at most minor symptoms eg mild to moderate headaches

elisabeth007 | @elisabeth007 | May 26 10:48pm

i have had a meningoma for almost a decade that apparently has recently changed. i’m seeing a neurosurgeon next week. please share what it’s like to have a meningoma biopsied and surgically removed

broncosport1 | @broncosport1 | May 26 8:43am

In reply to @mkoch "Is Gamma Knife the one where they have to mold a mask to your face?" + (show)

Yes gamma knife is the one they mold a mask to your face. I’ve had repeated meningiomas and gamma knife over the past 5 years. It stops the growth and I do receive MRI’s every 6 months so all are monitored for any signs of regrowth. Stay positive it’s the best way to heal and keep moving forward, my very best to you.

ella62 | @ella62 | May 26 2:43am

In reply to @elisabeth007 "i have had a meningoma for 5-6 years that has been monitored by my neuro-oprhamologist. On..." + (show)

Well I’ve yet to meet with neuro surgeons but shall update. All the best to everyone & thankyou for replies.

mkoch | @mkoch | May 25 10:20pm

In reply to @jmb73 "No, the one I had wasn't a mold. They put a helmet on me and gave..." + (show)

Thank you so much. I have 2 meningiomas that are being watched and was told I may need to have gamma knife. It must be cyber knife that a mask mold is made and I am claustrophobic and could not tolerate that.

jmb73 | @jmb73 | May 25 12:49pm

In reply to @mkoch "Is Gamma Knife the one where they have to mold a mask to your face?" + (show)

No, the one I had wasn't a mold. They put a helmet on me and gave me lidocaine and then screwed it on. The lidocaine stung but I only felt pressure with the screws. It really wasn't bad or painful.

elisabeth007 | @elisabeth007 | May 25 9:14am

In reply to @ella62 "I was diagnosed with a meningioma in 2011 and have only had it monitored in all..." + (show)

i have had a meningoma for 5-6 years that has been monitored by my neuro-oprhamologist. On May 7, 2024, i had another scan and was told by my neuro-opthamologist that the meningoma had enlarged. He immediately referred me to an oncology neuro-surgeon he highly trusts for an evaluation. Presumably, the two will develop a treatment plan. I would think among the first things the neurosurgeon will want to do is get a biopsy

mkoch | @mkoch | May 24 4:57pm

In reply to @jmb73 "Yes, it's called Gamma Knife surgery. I don't remember if it reduced the size of the..." + (show)

Is Gamma Knife the one where they have to mold a mask to your face?

jmb73 | @jmb73 | May 24 6:34am

Yes, it's called Gamma Knife surgery. I don't remember if it reduced the size of the tumor but it stopped it from growing. I have had no issues with it. If you and your doctor decide to have it done, I can walk you through it. I was very nervous and one of the gals in this group- Jill- did a step by step of the procedure. She helped me out a lot.
Good luck