Meningioma: Anyone else? I'm frightened
I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.
Interested in more discussions like this? Go to the Brain Tumor Support Group.
Connect

I also found out I had one through an incidental CT scan from a fall I had. Had the MRI and it was found in the dura(lining of my brain) and the neurosurgeon recommended gamma knife radio surgery bc of its size and location and my age (69). I went through with it bc I was making myself sick thinking about it all the time. I waited for about a year before doing it to see if it would grow and it did. That was enough for me to hear. I went through the gamma knife RS and it was painless. I’ll see in December if it stopped growing or hopefully shrunk a little bit (takes up
to 5 years). I’m petrified and praying to God it works. God bless you on your journey. It is scary.
-
Like -
Helpful -
Hug
2 ReactionsGood call
-
Like -
Helpful -
Hug
1 ReactionThanks for the correction, that's reassurng. I'm waiting on a call from my cancer doctor. Hoping ge can recomend someone.
My neurologist and neuro oncologist tell me that my Mengioma is inoperable. Neurologist yesterday answered saying that the meningioma can not be removed from the trigeminal nerve. I am only 59 and after reading this a second opinion is absolutely needed.
-
Like -
Helpful -
Hug
1 ReactionOh, darn, just reread what I posted in response to your reply and a correction needs to be made. The last sentence regarding the window closing for radiation therapy. It should be the window closes somewhere between 3 and 4 Centimeters, not millimeters. I am sorry for this typo. I guess I forgot to proof read. So you are still a candidate for radiation. Also, you are 67 years young; I was 72 when I had a craniotomy to remove a large meningioma that was almost 3 centimeters. By the way, the neurologist I consulted with initially gave me wrong information and said my benign tumor was inoperable. So I encourage you to now consult with a neurosurgeon, especially given you feel as if the neurologist didn't really discuss your situation at length. It's your brain, after all, and deserve to have all the details and options discussed.
-
Like -
Helpful -
Hug
3 ReactionsThank you. You just gave me a lot of info. Best so far. My nerologist didn't seem to want to discus it. She kept trying to move on to finish the results of my MRI. I don't even no mine is located. My turmor is 7x5x5mm so no radiation for me. I'm 67, might be to old for surgery.
-
Like -
Helpful -
Hug
1 ReactionWow! Your an inspiration and your ex is a jerk. You are very willed. I'm so happy to hear that your well now. I find it comforting when I hear success stories. I'm just starting this Journey
-
Like -
Helpful -
Hug
1 ReactionI had a meningioma removed at Mayo in 2007 when I was 63. They thought it would be benign but was a Who Grade 2. They wanted to do radiation as they thought it would grow back as cancer. I said no. It took me a few years to get "it together" but am now doing well. My EX husband was not supportive and left after a year when I still had difficulty walking and thinking well as my brain was still inflamed. But now I'm enjoying life much more. I was lucky as my meningioma was in my right frontal cortex and mostly effected my left side and balance rather than vision or memory.
-
Like -
Helpful -
Hug
2 ReactionsThanks! Reduces my anxiety.
They give you earplugs. Maybe they might have headphones for music
-
Like -
Helpful -
Hug
2 Reactions