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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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sbrecovery | @sbrecovery | Jan 6 6:52pm
In reply to @mkoch "Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma..." + (show)
@mkoch

Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma that was 1/16 th of an inch from my optic nerve. The neurologist that I first consulted when the meningioma was found incidentally during a scan for something else referred me to a radiation oncologist as I was told it was too close to my optic nerve to do surgery. The radiation oncologist agreed. My daughter insisted I go to UCSF and talk to a neurosurgeon.
He said, "No problem, I do one or two a week." (specifically that close to the optic nerve)
The surgery was successful; the entire meningioma was removed.
The surgery was much easier than I had ever imagined. I was home on the third day. Except for the pain med given during surgery, I only took tylenol. One drawback was that I did have double vision for 3 1/2 months after my surgery. But, that resolved and I am doing well. I might add that it is imperative that you receive care at a top notch neurosurgical center.

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I was diagnosed late spring last year 2024. Having light headedness and dizziness. Found a 3 cm on the front of my brain. Told like everyone else, slow growing, mainly benign. Saw my PCP for a follow up visit and shared more symptoms, like headaches, trouble speaking out words at times, confusion, difficulty concentrating, periodic ringing in ears. Did another MRI and it went from 3cm to 12 cm in about 7 months with significant findings. This was December 10th. Can't see my neurologist until Feb 6th to find out what the significant findings are. Since then, headaches are worse on that side of my head, constant pressure, head hurts to touch it in certain places, can feel pressure behind my eye now, vision has steadily decreased, concentration is worse, and even feel weak. I am truly concerned!

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2 replies
elisabeth007 | @elisabeth007 | Jan 2 5:19pm
In reply to @elisabeth007 "i just had a Meningioma surgically removed after being on watch & wait for almost 8..." + (show)
@elisabeth007

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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i too just had a meningioma surgically removed that was on wait and watch for almost 7 years

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thomhorowitz | @thomhorowitz | Jan 2 4:52pm
In reply to @thomhorowitz "Hardest part of recovery is avoiding all the cliches people feel like saying. The good news..." + (show)
@thomhorowitz

Hardest part of recovery is avoiding all the cliches people feel like saying. The good news is you found it early. As if there could be good in getting a malignant disease?!!?

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I appreciate people praying for me, but just send over a great fresh fruit pie.

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thomhorowitz | @thomhorowitz | Jan 2 4:50pm

Hardest part of recovery is avoiding all the cliches people feel like saying. The good news is you found it early. As if there could be good in getting a malignant disease?!!?

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1 reply
mkoch | @mkoch | Jan 2 12:34pm
In reply to @thomhorowitz "A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is..." + (show)
@thomhorowitz

A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is themprimary surgeon l

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thomhorowitz: Totally agree. This whole process, to be successful, needs to start with a solid foundation, that foundation being an excellent neurosurgeon. Glad to hear of your smooth recovery.

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thomhorowitz | @thomhorowitz | Jan 2 11:32am

A good neurosurgeon is key. Go to a teaching center and be sure attending faculty is themprimary surgeon l

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1 reply
thomhorowitz | @thomhorowitz | Jan 2 11:29am

I had a Glioma that ate most of my right temp. Lobe. 7.5 hrs in o r. No real post op pain. Out of icu in 1 day. Home in4. All that at 74 years of age.

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1 reply
jasonl1012 | @jasonl1012 | Jan 2 8:17am
In reply to @elisabeth007 "i just had a Meningioma surgically removed after being on watch & wait for almost 8..." + (show)
@elisabeth007

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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When you’re feeling up to it let us know how it went! Get rest, take it easy. I hope you recover quickly and completely! 🤗

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bailey0611 | @bailey0611 | Jan 2 7:27am
In reply to @elisabeth007 "i just had a Meningioma surgically removed after being on watch & wait for almost 8..." + (show)
@elisabeth007

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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That’s a long time on w&w. I’ve been 7 years. May I ask your tumors location and did it grow every year? Was it calcified and causing you issues? I hope you have a great recovery.

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elisabeth007 | @elisabeth007 | Jan 1 11:17am

i just had a Meningioma surgically removed after being on watch & wait for almost 8 years

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