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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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mono21 | @mono21 | Oct 1, 2025

Thank you. I hope all goes well for you. Keeping you in my prayers. Good luck

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Dolly Jane | @dollyjaneprenzel | Sep 28, 2025
In reply to @mono21 "Good morning! I haven’t been on for awhile but I have a quick update. I finally..." + (show)
Profile picture for mono21 @mono21

Good morning!
I haven’t been on for awhile but I have a quick update. I finally went to Mayo and I’m having surgery in November. Tumor will finally be out. It’s growing.
To be honest I’m scared.
Sending prayers to all of you

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@mono21
I am sure you are scared. I am scared but no surgery yet. I don’t know yet if mine is growing but am going for MRI tomorrow. Best wishes and blessings to you.

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1 reply
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Dolly Jane | @dollyjaneprenzel | Sep 28, 2025
In reply to @ladydi75 "I was diagnosed about a month ago and still waiting to see a neapologist. Most of..." + (show)
Profile picture for ladydi75 @ladydi75

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

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@ladydi75 I’ve got pain behind my left ear. It seems to go over the top of my head and down the right side. Gets worse with stress.

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Randy Shields | @randallshields56 | Sep 27, 2025
In reply to @ladydi75 "I was diagnosed about a month ago and still waiting to see a neapologist. Most of..." + (show)
Profile picture for ladydi75 @ladydi75

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

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i hope you get some good news and being frightened and worried, there are
a lot more things i can mention. but in the end all that did was to make
me unhappy and worry more, so i put it in the blessings hands tand started
taking care of things i had been postponing. mostly little things.
some time later a couple operations and i am getting back to my old self.
just try to make others happier as i can.
have a blessed day.

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ladydi75 | @ladydi75 | Sep 27, 2025

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

REPLY
2 replies
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mono21 | @mono21 | Sep 27, 2025

Good morning!
I haven’t been on for awhile but I have a quick update. I finally went to Mayo and I’m having surgery in November. Tumor will finally be out. It’s growing.
To be honest I’m scared.
Sending prayers to all of you

REPLY
1 reply
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Dolly Jane | @dollyjaneprenzel | Sep 20, 2025
In reply to @mkoch "Dollyjane: Truly, I just had a steroid injection in my ball and joint hip socket 36..." + (show)
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Dollyjane: Truly, I just had a steroid injection in my ball and joint hip socket 36 hours ago and I'm in far more pain than I ever was after my craniotomy.

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Thank you, Mary Ann. That is reassuring.

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Maryann | @mkoch | Sep 19, 2025
In reply to @dollyjaneprenzel "WOW!" + (show)
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WOW!

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Dollyjane: Truly, I just had a steroid injection in my ball and joint hip socket 36 hours ago and I'm in far more pain than I ever was after my craniotomy.

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1 reply
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Dolly Jane | @dollyjaneprenzel | Sep 19, 2025
In reply to @mkoch "ponce1991: I had a craniotomy on Oct. 17. Two weeks later I was passing out Halloween..." + (show)
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ponce1991: I had a craniotomy on Oct. 17. Two weeks later I was passing out Halloween candy. My scar went from my left ear to the top of my head. (I had like 45 stitches where they sewed the skin flap down after removing it for surgery.) I have 2 other meningiomas that we are just watching with yearly MRIs. I know what the surgery is like, having gone through it, and I refuse to worry about the other 2 in my brain unless I have to; and that would be if a follow up MRI shows the meningioma has grown to the point that something needs to be done about it.

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WOW!

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1 reply
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Dolly Jane | @dollyjaneprenzel | Sep 19, 2025
In reply to @rgraserb "I was told by my primary that I would be seeing a neurosurgeon not a neurologist..." + (show)
Profile picture for rgraserb @rgraserb

I was told by my primary that I would be seeing a neurosurgeon not a neurologist and that it wasn’t an emergency but not to wait 6 months down the road. To me that sounds kinda urgent.

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Go asap.

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