Meningioma: Anyone else? I'm frightened

@brendakoviedo33: I assume the doctor who ordered the MRI had a recommendation after he read the report from the radiologist. What did the ordering doctor suggest as the next step?

@brendakoviedo33

Based on my experience, I encourage folks to go ahead and have the recommended treatment, which may include surgery. The meningioma won’t go away on its own and there’s some potential for things to quickly go really wrong, as they did for me.

As I’ve mentioned here, I had a stage 2 meningioma which bled, a stroke. And the odds of a successful outcome of the surgery went from maybe 9 in 10 to 1 in 10 (the neurosurgeon’s estimate when talking to my son who authorized the surgery) with that bleed. So instead of a routine scheduled surgery, there was a 911 call, a helicopter ride from a community hospital to a research hospital and emergency surgery at 3:30 in the morning.

This was almost 9 years ago. I realize the gift I’ve been given and try to make the best use of my remaining life.

Hi, I was also diagnosed with a meningioma in the Front side of brain, about 4 month ago I had dizziness and ringing on the ear and mi migrain headaches where like 20 por month, I also noticed memory loss and trouble focusing or sometimes when speaking some words , so I had this MRI Scan and that was my diagnosis, its the size of a pea. Its scary I'm very worried about the future, if I have to get a risky surgery I don't know if I will do it ir not! But I trust God and know that he has the control in my life!

Just my "Google research" :Meningiomas larger than 3 cm (yours would be 3.7 cm) may be considered for surgical removal, especially if they are causing symptoms or are located in a critical area of the brain. No, a larger meningioma does not necessarily indicate cancer; while larger tumors can correlate with higher grades and aggressive behavior, most meningiomas are benign (non-cancerous) and grow slowly. The grading of a meningioma, determined by its cell appearance under a microscope, is the primary factor for assessing its potential to be cancerous, not its size alone"

If you are on FB, look at a couple of these groups. I've joined 3, and have gleaned a lot more information from them than from doctors. Meningioma Talk, Multiple Meningioma Support Group, and there are other helpful groups.

@ankona is 37.19 mm large & does it usually mean that it is a higher grade when it is larger?

most of them are benign. Only 1-3% of them are stage 3 malignant, as mine was. Size and location has a lot to do with whether NS will do surgery, or watch and wait until it gets big enough. Mine was baseball size, so NS took it out right away, June 2024. It was over 6 MM (not cm). I didn't freak out about all this, because I know God is in charge, and this is part of His plan for me. My surgery was perfect, it all came out in one piece, and I went through 6 weeks of daily radiation because it was cancerous. I came through all of that unscathed by any loss of function or adverse complications except losing my hair from radiation. I know God planned for me to come through this unharmed because He's going to use me for something. I just don't know what that is yet. Try not to worry too much until you see the NS and find out how big it is and where it is. May God watch over you in the process

@meepmufasa I'm very happy on the successful removal of your tumor. It makes me feel calmer

@dollyjaneprenzel. oh no! I know that's frustrating. Hang in there

Thank you so much for checking. My MRI had to be postponed because of a conflict with an implant which no longer works. Went two days in a row. Very frustrating. Trying again next week. Will post. Appreciate your kindness! Dolly

@dollyjaneprenzel how did your MRI go? Have you received the results yet.? Praying for you