Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for crowley53 @crowley53

After I went deaf in my Lt ear I had an MRI. They found 2 on my RT side by the optic nerve and nerve to ear. This was a year ago. Still deaf in Lt ear and the RT Eye tumor started to grow. Just completed 5 radiation treatments. You just move forward. What else can you do? My next MRI is in March and I'll see what comes next.

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@crowley53

This is too much for one person to handle. I am so sorry. I pray you can find effective treatment.
Dolly

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After I went deaf in my Lt ear I had an MRI. They found 2 on my RT side by the optic nerve and nerve to ear. This was a year ago. Still deaf in Lt ear and the RT Eye tumor started to grow. Just completed 5 radiation treatments. You just move forward. What else can you do? My next MRI is in March and I'll see what comes next.

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Just diagnosed on Tuesday. Meeting with a surgeon today. I'm feeling overloaded with facts and information. I'm hoping for some clear direction from the doctor.

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janeelaine: Radiation scares me, too. But if you have no other option, that is just what you may have to do. But I am wondering, if perhaps, resection was ever mentioned as an option. I was told by my neurosurgeon that to remove the meningioma, if possible, is always the preferred way to go. I had a craniotomy and it was not a big deal. So if that is an option, give it some thought.

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I do. It's pressing on my frontal lobe. Drs talking about radiation but that scares me. I'm going to conference with a radiologist who is researching genetic predispositions for those who respond well to radiology, and those who do not

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I do. It's pressing on my frontal lobe

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Profile picture for Randy Shields @randallshields56

welcome to the group and you couldn't have a better group of people to help you out.
best news i can give you is relax best as you can, worry don't help and can in my opinion be worse for your health. so here i go, fine someone or something that means the world to you and fight every day with that thought in the forefront of your mind. exercise to stay ahead of what might be coming your way. best of luck and huge hug for you today, lastly get some prayer groups going for yourself. have a blessed day.

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@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in angels and miracles and that enough warriors fighting for the same cause helps. that's a good ting. tis all that i was trying to get across to you. i had a tumor right frontal lobe that caused a lot of the same symptoms you described. then they ended up going after a bleeder. imp doing great right now. i was to some of my family , don't know if you've watched the movie 50 first dates but that was me. have a awesome day today and prayers your way and blessings.

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Profile picture for ladyluck236 @ladyluck236

@ankona is 37.19 mm large & does it usually mean that it is a higher grade when it is larger?

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@ladyluck236, I hope you've seen the helpful replies to your questions from members like @ankona and others. Size does not determine grade. Size refers to the dimension of the tumor, whereas grade refers to tumor's agressiveness (in terms of liklihood to grow slow or more quickly).

Have you learned what grade your meningioma is? Will you require treatment? How are you doing?

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welcome to the group and you couldn't have a better group of people to help you out.
best news i can give you is relax best as you can, worry don't help and can in my opinion be worse for your health. so here i go, fine someone or something that means the world to you and fight every day with that thought in the forefront of your mind. exercise to stay ahead of what might be coming your way. best of luck and huge hug for you today, lastly get some prayer groups going for yourself. have a blessed day.

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Profile picture for poofy @poofy

I was just diagnosed with a meningioma brain tumor last week. I'm freaking out a little. I saw that you had trouble with you vision. My vision has gotten really bad really fast. I don't know if were the same but can you describe what you see. I can't see at night. All the lights look like fire works. Its awful and pretty at the same time. My memory is also bad. I can't remember the name of things. And sometimes I lose my train of thought at the end of a sentence. I'm scared too

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@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I just read my results from the MRi myself and now I wish I hadn’t. My memory has been bad lately too. I forget words and can’t finish a thought. Would like to keep in touch with others going through this scary stuff.

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