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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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mono21 | @mono21 | Nov 14, 2025

Yes I had one in September. My Meningioma has grown and I’m having surgery on Wednesday. I’m scared.
Make sure you ask plenty of questions. Good luck.

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mono21 | @mono21 | Nov 14, 2025
In reply to @dollyjaneprenzel "See a neuroSURGEON asap. Neurologists will want to “wait and see” which may not be the..." + (show)
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See a neuroSURGEON asap. Neurologists will want to “wait and see” which may not be the best course of action.

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@dollyjaneprenzel Hi,
Good luck. I went to Mayo in September and the doctor said my Meningioma needs to come out. I’m flying out of Albuquerque on Sunday to Mayo. Surgery is Wednesday. I’m kinda scared.

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Dolly Jane | @dollyjaneprenzel | Nov 13, 2025

See a neuroSURGEON asap. Neurologists will want to “wait and see” which may not be the best course of action.

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Colleen Young, Connect Director | @colleenyoung | Nov 12, 2025
In reply to @ohmyhead "Just diagnosed on Tuesday. Meeting with a surgeon today. I'm feeling overloaded with facts and information...." + (show)
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Just diagnosed on Tuesday. Meeting with a surgeon today. I'm feeling overloaded with facts and information. I'm hoping for some clear direction from the doctor.

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@ohmyhead, how did your appointment with the surgeon go? Did you get clear direction on next steps? How are you doing?

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jasonl1012 | @jasonl1012 | Nov 12, 2025
In reply to @mkoch "Jason: I think that's what I would do, just monitor as long as scans show no..." + (show)
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Jason: I think that's what I would do, just monitor as long as scans show no growth. Hopefully your upcoming MRI shows no discernable growth from last year and you can just let things lie for another 365 days.

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@mkoch
I hope!

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Maryann | @mkoch | Nov 11, 2025

Jason: I think that's what I would do, just monitor as long as scans show no growth. Hopefully your upcoming MRI shows no discernable growth from last year and you can just let things lie for another 365 days.

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jasonl1012 | @jasonl1012 | Nov 11, 2025
In reply to @mkoch "@jasonl1012: Is the situation that if it isn't growing you can't keep forestalling radiation?" + (show)
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@jasonl1012: Is the situation that if it isn't growing you can't keep forestalling radiation?

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@mkoch
I think if it isn’t growing I would keep monitoring it. I was told it will grow, they just couldn’t say how much or how fast

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Maryann | @mkoch | Nov 10, 2025
In reply to @jasonl1012 "@crowley53 I have an MRI soon to see. It’s the one year after surgery MRI" + (show)
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@crowley53
I have an MRI soon to see. It’s the one year after surgery MRI

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@jasonl1012: Is the situation that if it isn't growing you can't keep forestalling radiation?

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jasonl1012 | @jasonl1012 | Nov 10, 2025
In reply to @crowley53 "Jason, How did they find your tumor?" + (show)
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Jason, How did they find your tumor?

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@crowley53
A CT exam looking at why my ear was plugged up and the ENT couldn’t figure out why. It showed up on that

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heni110 | @heni110 | Nov 10, 2025
In reply to @randallshields56 "@heni110 , to be truthful rather you buy it or not s your call, everyone's different..." + (show)
Profile picture for Randy Shields @randallshields56

@heni110 , to be truthful rather you buy it or not s your call, everyone's different and treats conditions in various ways. i kickback and think of places I've been or want to visit or just a good time, that takes some concentration to bring it up but at the same time relaxes me , trigger guards. stressing is not gonna help but hinder your progress. i I'm a recovering TBI victim of brain tumor that was cancer and cancer both at the same time plus lung cancer. no guarantees no warranty, just prayer chains and the will to live and fight for every breath. i don't know the future and todays my birthday. going to go out and have dinner with family and friends and pray i don't have another seizure along the way. but i will raise my hand and my daughter knows i need a time out to ease my mind use that trigger to put everyone at ease and not stress out. at least it helps me i turned 69 today. Loving the day even after i tore some meat from my arm again. blood thinners oh the life. have to be easier the rest of the day. good luck to you and ill say a prayer for you.

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@randallshields56 hi
Take one day at a time
My treatment been going on for over ten years surgery radio therapy still don’t know if I’m clear
Still trying to control the mood swings the memory a pile crap
But I can live with all of this my wife been an absolute rock given up thinking about tumours the stress doesn’t help tomorrow another day
Hope your doing well and in good space

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