Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for poofy @poofy

@crowley53 oh my gosh, I'm so sorry that happened to you. I have never heard of sudden hearng loss. I bet it feels weird. I just had my hearing checked and both ears are below the normal hearing range. My doctor wants me to get hearing aids. But my insurance won't cover them. he said try them for 30 days and if I don't like them take them back. That seems weird to me if I need them why would he say that? I asked if if the loss was from the tumor and he sad "oh you have a tumor" its written all over the papers I feeled out. Righ there I lost my confidence in him. I gave him my mri cd and I don't think he could find the tumor. The way he was looking at it as to fast and jumping back and forth between images. Then he got up and said the tumor is not causing the hearing loss and walked away. Appontment over . So I'm not confident with him. He looked and acted like he was ninety. Kinda bent over and shuffeling his feet. So now I have to get another oppinion.

Jump to this post

@poofy, Find another Doctor! Your Dr. should help with an appeal to the insurance company. You have to fight for yourself. Be strong and fight for what you deserve. It's ok to cry but come back stronger.

REPLY
Profile picture for crowley53 @crowley53

@poofy ,No, they say the hearing loss is from a virus. I woke up deaf on the Lt side. It's called Sudden hearing loss. They don't know anything about it. They tried steroids by mouth then injected into the ear drum. It did nothing.

Jump to this post

@crowley53 oh my gosh, I'm so sorry that happened to you. I have never heard of sudden hearng loss. I bet it feels weird. I just had my hearing checked and both ears are below the normal hearing range. My doctor wants me to get hearing aids. But my insurance won't cover them. he said try them for 30 days and if I don't like them take them back. That seems weird to me if I need them why would he say that? I asked if if the loss was from the tumor and he sad "oh you have a tumor" its written all over the papers I feeled out. Righ there I lost my confidence in him. I gave him my mri cd and I don't think he could find the tumor. The way he was looking at it as to fast and jumping back and forth between images. Then he got up and said the tumor is not causing the hearing loss and walked away. Appontment over . So I'm not confident with him. He looked and acted like he was ninety. Kinda bent over and shuffeling his feet. So now I have to get another oppinion.

REPLY
Profile picture for Dolly Jane @dollyjaneprenzel

@crowley53

This is too much for one person to handle. I am so sorry. I pray you can find effective treatment.
Dolly

Jump to this post

@dollyjaneprenzel , I'm doing fine so far. Just tired after radiation. Trying to back off being hard on myself for not doing more at home and in the yard.

REPLY
Profile picture for poofy @poofy

@crowley53 you have tumors on the right side but can't hear out of the left. Are the tumors related to the hearing loss?

Jump to this post

@poofy ,No, they say the hearing loss is from a virus. I woke up deaf on the Lt side. It's called Sudden hearing loss. They don't know anything about it. They tried steroids by mouth then injected into the ear drum. It did nothing.

REPLY
Profile picture for griffin84 @griffin84

@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I just read my results from the MRi myself and now I wish I hadn’t. My memory has been bad lately too. I forget words and can’t finish a thought. Would like to keep in touch with others going through this scary stuff.

Jump to this post

@griffin84 I would really like yo keep in touch. We can go through together

REPLY

Its unnerving. I know I drove there but I couldnt do it again. I'm trying to get my husband to drive me more often. I'm affraid I'm going to be driving and forget where I am or where I'm going. Its s strange feeling

REPLY
Profile picture for poofy @poofy

llshields56 I'm kinda doing the same thing as you with the first fifty dates. I went to a hearing Dr. A few days ago. I have no memory of driving there, or where is was. I vaguely remember the doctor. Its so weird and scary

Jump to this post

@poofy That is very frightening. I can just imagine how you must feel.

REPLY
Profile picture for crowley53 @crowley53

After I went deaf in my Lt ear I had an MRI. They found 2 on my RT side by the optic nerve and nerve to ear. This was a year ago. Still deaf in Lt ear and the RT Eye tumor started to grow. Just completed 5 radiation treatments. You just move forward. What else can you do? My next MRI is in March and I'll see what comes next.

Jump to this post

@crowley53 you have tumors on the right side but can't hear out of the left. Are the tumors related to the hearing loss?

REPLY
Profile picture for Randy Shields @randallshields56

@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in angels and miracles and that enough warriors fighting for the same cause helps. that's a good ting. tis all that i was trying to get across to you. i had a tumor right frontal lobe that caused a lot of the same symptoms you described. then they ended up going after a bleeder. imp doing great right now. i was to some of my family , don't know if you've watched the movie 50 first dates but that was me. have a awesome day today and prayers your way and blessings.

Jump to this post

llshields56 I'm kinda doing the same thing as you with the first fifty dates. I went to a hearing Dr. A few days ago. I have no memory of driving there, or where is was. I vaguely remember the doctor. Its so weird and scary

REPLY

Good morning. Yes I have one also. I tripped and fell back in 2021, went to ER and was told that everything looked good, and that my Meningioma from 2006 hadn’t grown much. No one ever told me that I had one. Long story short, I had the Gamma Knife in March, 2024. It was amazing I was in and out in 1 day. Latest MRI, shows, that it hasn’t grown since. The outcome will be that it will eventually start slowly shrinking. Get a good Dr. and a good hospital. I’m fortunate to live within distance of Univ. of Pa. Good luck. I know that it maybe scary, but, fortunately they have a non-invasive procedure that hopefully you’ll qualify for.

REPLY
Please sign in or register to post a reply.