Meningioma: Anyone else? I'm frightened

i hope you get some good news and being frightened and worried, there are
a lot more things i can mention. but in the end all that did was to make
me unhappy and worry more, so i put it in the blessings hands tand started
taking care of things i had been postponing. mostly little things.
some time later a couple operations and i am getting back to my old self.
just try to make others happier as i can.
have a blessed day.

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

Good morning!
I haven’t been on for awhile but I have a quick update. I finally went to Mayo and I’m having surgery in November. Tumor will finally be out. It’s growing.
To be honest I’m scared.
Sending prayers to all of you

Thank you, Mary Ann. That is reassuring.

Dollyjane: Truly, I just had a steroid injection in my ball and joint hip socket 36 hours ago and I'm in far more pain than I ever was after my craniotomy.

WOW!

Go asap.

Thank you

edeva14: Sometimes when all factors are considered gamma knife is the best option. I think you'll be pleasantly surprised, come December, to see that everything is stable. Hugs to you.

My 2.7 centimeter meningioma was either sitting on my trigeminal nerve, or nearly so. (Another reason not to let doctors who are not neurosurgeons poo-poo your concerns about these meningiomas that "are almost always benign; we'll just monitor." Had mine been dealt with a year and a half earlier when I brought it to my P.C.P.'s attention (after it was found incidentally in the ER) maybe it would not have grown so close to my trigeminal nerve, or my optic nerve. The neuro doc at UCSF who saw me shortly before I was wheeled away into the operating suite specifically make a point to tell me that they were going to try very hard to scoop out the entire meningioma but that they would not in any way compromise my trigeminal nerve in the process; they would just go for partial resection if that were the case. So maybe your doctors are thinking the possible is impossible. In my situation, it was the same as yours, that being that both the neurologist and neuro oncologist told me mine was inoperable. I wouldn't settle for Joe-the-Blow neurosurgeon either to get your 3rd opinion. You are only 59, deserve the best care and outcome. Try to get into a university affiliated school where they keep up with the latest research and interventions, such as Mayo Clinic. There is no Mayo Clinic in Calif. I recommend UCSF for those that live here , or have access to a local airport with an easy non-stop flight from your city to San Francisco.