Meningioma: Anyone else? I'm frightened

thank you
very much

Perfect response.

Stay strong. Was in shock from last April 2024-Aug 2024… was diagnosed with meningioma last Spring after experiencing severe headaches. It was big and swollen and I had tumor resection and craniotomy to remove most of it.
Surgery went fine and in Summer after a few more scans I had a small bout of radiation to simmer what was left. It was benign, but a “grade 2”. Radiation went fine. And will probably have scans every 3 to six months going forward. Hoping for no more surgeries.

doctors go off what they have seen or gone through with other patients. keep this in the back of your head. each person is different, no two alike, some close but nope not the same . fight for what you want, find a friend to go through this with you and enjoy whatever you can.. ok going to go grab a sandwich. chat again later. just message me.

my doctor thinks the same anxiety and stress levels are through the roof, if they were in my brain they would be running away from fast conclusions. and possibly get some things corrected.
well worth a try anyway. smile it makes them wonder what's on your mind. have a great afternoon going to go ride 5 miles for the exercise.

sounds like your a fighter too, i will send a quick prayer your way and feel free to chat anytime or ask a question. glad your still among us and can pass on experiences.

Your story really resonated with me and this discussion. Nine years ago, my doctor thought I was having panic attacks. And so no brain scan. Fast forward some months, my meningioma bled, a stroke. Emergency responders, a helicopter ride and emergency surgery at 3:30 am with the doctors telling my son that even with the surgery I had a 1 in 10 chance of having a meaningful life. Without it, of course, no chance. A routine although technically complex surgery was now an emergency with iffy results. Meningiomas which bled are uncommon, but some do and if they do, odds for a successful outcome are much reduced.

I just finished radiation for it in the spring/winter. I had a craniotomy in 2023. Stay Positive. The best thing I did was quit drinking after my surgery. exercise is your best friend.

Thanks for sharing. I'm in Arizona and going to Mayo here. It is really quite frightening.

I got three consults, including Rochester Mayo. I went to Dr. Gardner at UPMC Mayo because he had done 250 that year alone (it was July) and thousands in his career. The doctor at Mayo agreed with his assessment and treatment. She does about 100 a year of tumors in this exact spot just like him. They specialize skull-base tumors. She said Dr. Gardner trained her to do these in her Fellowship. He was much closer also, so it just made sense to go to him. I think she would’ve been excellent as well. Feel free to private message me. I’m more than willing to talk more or even have a phone call.

Best,

Jason