Has anyone had either at Mayo Clinic or Johns Hopkins?
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I urge anyone with a single brain meningioma to research Proton Beam Radiation. One of the Mayo Clinics has that treatment. I had it in Bloomington, Indiana 6 years ago with absolutely clear followup MRI’s every year since. When you research, pay attention to the Bragg Peak phenomenon – the radiation goes no further than the tumor (unlike the Cyber and Gamma Knife treatments) I am on Medicare with Anthem BC BS supplement and it was totally covered. My tumor was up against the brain stem. The linear accelerator in Bloomington was aging and that facility was closed. My husband and I refer to our time as “one of our best vacations”. I felt good the entire time.
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Thank you for sharing. This could be an option for me if mine starts to grow.
Anybody have an ogliodendroglioma?? If so could use some support!
Hi…what "effects" did you experience? Thanks! I have a family member going under the gamma knife next week in Rochester.
Is anyone on this site who is 5-10 years past Gamma Knife or Cyber Knife radiation for meningiomas? Does anyone know anything about Dr Al Mefty’s research on long term effects of radiation
Hi, @nancye3 – I moved your post here to this thread where you were talking with members previously about meningioma and gamma or cyber knife so they can respond to your question about whether anyone might be 5-10 years out from this treatment. @tumorcyberknife may have information on how they are doing now and perhaps @fiddlemama can speak to years out from proton beam.
How are things going with your sister, nancye3?
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