MEN Type 2B medullary thyroid cancer

Posted by cookad @cookad, Jan 5 8:06pm

Does anyone know of a top endocrinologist at Mayo Clinic in Jacksonville who specializes in treating Multiple endocrine neoplasia type 2B cancer?

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Jan 6 2:42pm

Welcome, @cookad. I'm tagging @alijua who was also diagnosed with Multiple endocrine neoplasia (MEN) 2 medullary thyroid cancer, albeit MEN type 2A rather than 2B. You can connect with other members dealing with medullary thyroid cancer in this related discussion too:
- Anyone here with Medullary Thyroid Cancer? https://connect.mayoclinic.org/discussion/anyone-here-with-medullary-thyroid-cancer/
.
First to your question about a specialists at Mayo, Jacksonville. Mayo Clinic specialists work as a team to listen, counsel and treat people who have multiple endocrine neoplasia, type 2 (MEN 2). The team may include experts in endocrinology, endocrine surgery, gastroenterology, neurosurgery, oncology, interventional radiology, radiation oncology, medical genetics and other areas if needed. You may wish to contact Mayo Clinic to ask more specifics. Here's how http://mayocl.in/1mtmR63

@cookad, is this a new diagnosis for you? Have you had any treatment yet or a treatment plan?

cookad | @cookad | Jan 6 3:21pm

Thank you for the reply I appreciate it !

cookad | @cookad | Jan 6 3:21pm

In reply to @cookad "Thank you for the reply I appreciate it !" + (show)

Thank you very much !❤️

cookad | @cookad | Jan 6 5:02pm

In reply to @colleenyoung "Welcome, @cookad. I'm tagging @alijua who was also diagnosed with Multiple endocrine neoplasia (MEN) 2 medullary..." + (show)

By the way it’s my nephew who is age 42 that has the MEN type 2B medullary thyroid cancer .
My sister had it and passed at age 59 back in 2018 .
So she had two kids that had it and then her daughter had two children and one of them has it but my my brother and I did not get it , nor did our parents have it so it must have been a mutated gene maybe that started with my sister …

alijua | @alijua | Jan 7 3:26am

Hello.
I am in California and not aware of any endocrinologists that specializes in MEN syndrome. Since your sister passed it on to her child then would it still be sporadic? I think it is genetic. At least that is what I have read. You can also look into AMEND. They have pamphlets/booklets on the different types of MEN syndrome.

Colleen Young, Connect Director | @colleenyoung | Jan 7 9:37pm

In reply to @cookad "By the way it’s my nephew who is age 42 that has the MEN type 2B..." + (show)

Has your family considered genetic testing and counselling?

Please sign in or register to post a reply.