Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

ukmalsman | @ukmalsman | Apr 7, 2019

In reply to @kariulrich "Let's try this!" + (show)

Hi @kariulrich

It’s been a long time since I have been on here due to poor health. December was the last time I was able to log in so I have a lot to catch up on. I was wondering if you have heard anything from @racheldmark, how is her uncle @ruudolpho has he made any improvements since December?

kellylinn | @kellylinn | Apr 7, 2019

In reply to @kariulrich "Thank you, Yes @lisa01 I am part of MALS PALS, but I do like the security..." + (show)

I'm interested
I underwent a SMA bypass surgery 10 hours and now am facing the next battle with my Celiac diagnosed with both disorders.

chicken | @chicken | Apr 7, 2019

Does anyone find that they crave salt and absolutely NEED it? I'm wondering if this is a symptom MALS patients have, or if it's just me:)

jayhawk57 | @jayhawk57 | Apr 6, 2019

In reply to @kariulrich "@tutogrl Yes!! I cannot wear belts, I eat laying down sometimes... I often when sitting have..." + (show)

I have the same issue. I now have a hernia from my MALS surgery in 2013. I'm having issues as I did before surgery. No one wants to touch me. Do you think coming to Mayo since I have FMD as well will help? Thanks!

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 5, 2019

In reply to @dave06351 "That link doesn't work for me. Maybe because I'm using a smartphone for access." + (show)

Let's try this!

Shared files

UPDATED MALS SURGEON LIST 3 (UPDATED-MALS-SURGEON-LIST-3.25.18.pdf)

Dave | @dave06351 | Apr 5, 2019

In reply to @kariulrich "@dave06351 there is a peer-recommended list. You can find the updated list on mals pals under..." + (show)

That link doesn't work for me. Maybe because I'm using a smartphone for access.

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 5, 2019

In reply to @dave06351 "Long time no see... Dr. Hsu refused to do my surgery because of the injury that..." + (show)

@dave06351 there is a peer-recommended list. You can find the updated list on mals pals under files. https://lookaside.fbsbx.com/file/UPDATED%20MALS%20FRIENDLY%20SURGEON%20LIST%204.8.18.pdf?token=AWyptRidNd0VuqcLxpdW14BhozN8m0Ha0HHgt7-hp-RP2OL3p5Fli7rmT6xGv7CyF6vhZWFqXshc3nexnpvarvperKTxuTGoFT__O5QQiWUZB1btXs6xOP6q9wYwJWtZqQnrdBsIq3Q8bjJARdinofV1

chicken | @chicken | Apr 5, 2019

In reply to @marideth401 "Yes. I also have a hard time eating in a seated position. My job is sedentary..." + (show)

Have you considered surgery?

marideth401 | @marideth401 | Apr 5, 2019

Yes. I also have a hard time eating in a seated position. My job is sedentary and often I don’t eat until the afternoon. When I go home I lay down which helps tremendously. The down side is I have no life.

Dave | @dave06351 | Apr 4, 2019

Long time no see... Dr. Hsu refused to do my surgery because of the injury that caused the issue. I've tried everything but the log story is I need this surgery in order to restore functionality of my muscles in my back. Being unable to bend or twist without aggravating the nerve center is causing a lot of other problems.

I need a surgeon list and the types of decompression they do. Does anyone have that info? I've requested access to mals pals but no response yet.