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Median Arcuate Ligament Syndrome (MALS)
I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?
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I can’t bevsyde the meds that make my heart go slower make my bp too low. What do you take ? My resting hr id always around 110 and it goes to 150 if I move around at work and after I eat
I went to UPenn for tilt table and qsart and breathing test. (Was normal ) I had four ges , two small bowel motility and one full gut motility test. (Eat eggs and the take pics of where the eggs are ). All normal
Do you take meds for heart rate or bp? I take midodrine.
Maybe. Did you have motility testing? Do you have a regular gi dr? How’s your appetite? Did you go to a special lab for dysautonomia testing?
My tilt test was normal but I had sympathetic and parasympathetic tests that were abnormal in one and then it flopped to abnormal in the other but my symptoms are the same either way so idk how accurate it is. Idk if it’s from mals squeezing the celiac plexus or if there’s something wrong w my nervous system. I’ve had so many gi tests and nerve tests. The only test I didn’t have is a small bowel manamotry
I have mine on and off through out the day. Looking for dysautonomia specialist at vcu. My dr is referring me. My neurologist said it’s not her specialty. And I need to do the testing to see which one I have. Evidently there are many different types. Were you tested?
I have fatigue and get dizzy when I stand up and after I eat.
I did not have surgery yet. The celiac plexus block didn’t help. So my dr uses that as a gauge for open surgery. I go back again in six months to see if the block works. I think most of my chest pain is from dysautonomia. Are you fatigued all the time? Do you get dizzy spells?
I do have dysautonomia. Did you get mals surgery ? I don’t remember if you told me.
Yes that’s typical for Mals. However you can have pain in chest as well. Have you been diagnosed with dysautonomia? My surgeon said the majority of her Mals patients have this as well. It affects your bp heart rate etc.