Median Arcuate Ligament Syndrome (MALS)

Hello @cornishrex,

Welcome to Connect. I'm sorry to learn about your diagnosis, and glad that you've joined us here.

I’m confident that @kariulrich will reply to you soon. It helps so much to hear from others who have experience with the same condition. I'm also tagging @artistgma @evileye00 @lmtuska @evrose23 @jamorris9 @sarah1317 @coffeelatte @azbluebird who have all posted and shared their experiences in this discussion.

@cornoshrex, how are you managing your symptoms currently?

This web support page? malssupport.com I couldn't find anything regarding physicians here.

I have been diaignosed w Mals recently. I am having surgery in Aug...There is a website MalsPals, you can join therm..Theres very good info on thst website.

I was just diagnosed with Celiac Artery Compression Syndrome following a CT Angio. I am being referred to a vascular surgeon but would like to be sure to talk to one that is familiar with the syndrome. I live in San Diego and have access to the doctors at UCSD. How do I find one that will best be able to help me.

@azbluebird did you hear back from MalsPals? How are you doing??? I have been thinking about you.

Hi @carolina58! Welcome to Mayo connect, I have been diagnosed with MALS over a decade now and have had 2 surgeries. For me the pain has returned for a third time and I am in the process of ruling out other possibilities. Thank you for mentioning Mals Pals on facebook, my friend Robin is a moderator for that site and I find it to be helpful also. I was so happy when Mayo Connect came on with patient support, as I believe there is room for several online support groups. 3.5 years to be diagnosed! It amazes me how long patients have to endure pain to get relief. How are you doing since your surgery? Have you had any pain return?

Hi
I was just diagnosed w mals.i thought i had the flu. Well its been 3.5 years later its a diagnosis of exclusion. Usually lots of tests prior w neg results. There is a site called Mals Pals. its a closed group so you are freeto discus sympotoms. Join itits loaded w info and very caring persons along the same journey.. I belong.feel free to check it out on facebook. It will really explain and helpi beong to it .. Good luck......i also had a Nissen Fundo done a few years ago. Full wrap. Carolina58

Thanks everyone, especially for the surgeons name.

I'm currently waiting to hear back from MALS PALS to be "friend-ed"

I did have a ganglionectomy and my symptoms have come back twice. (I have had surgery twice) This is such a confusing disease. My first surgery was release of the ligament, bypass of the celiac artery and patch angioplasty of hepato/splenic artery, and removal of ganglion. Second surgery was 3 years later, as a exploratory surgery due to return of symptoms and no found cause (All my imaging came back normal, yet classic symptoms and weight loss). I had revision of my bypass graft, used omental patching to decrease scar tissue build up. (There was A LOT of scar tissue) and remove more ganglion and inject with steroids. Now 2 years later the symptoms are back, all imaging is great. I believe we will be looking at a celiac block to control pain. I see the doctor next week. I have never regretted having any of the surgeries as the time that I had pain free was marvelous! It is hard to tell that soon post op with your daughter what could be causing the pain. I know I had to continue to be careful not to overeat. I still would require frequent meals, but I could eat more. I believe it takes well over a year to fully recover, so give her some time. If the pain is severe and relentless she needs to be seen. Is she having any other symptoms with the pain?

Hello @evileye00,

Welcome to Connect; you've asked some great questions. @kariulrich, @lmutska do you have any insights that might help @evileye00's daughter?