Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Support

this is absolutely necessary please

@alineechelard - we are always expanding and evolving the community as it grows. In the meantime, using the search function at the top of the site can be useful to find current discussions on topics that may not yet have their own support group.

Here are a few I think you may find helpful:

"Help with Chronic Fatigue Syndrome" - https://connect.mayoclinic.org/discussion/help-with-chronic-fatigue-syndrome/

"Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments" - https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

I agree with you so much!!! Every day is a fight and we need support!

I have been following the research and evolution of the understanding of Long Covid for several years. There are many parallels between symptoms of ME/CFS and Long Covid, and the thought is that both are still somewhat mysterious responses to the body's assault by infectious agents. I recommend visiting the Bateman Horne Center, which has been doing research in ME/CFS for years, and is now one of the leading educators and resources for Long Covid. They have excellent resources for both patients and providers. Here's the link: https://batemanhornecenter.org

I forgot to mention that, because of the similarity between the symptoms of ME/CFS and Long Covid, you may find the Post-Covid Recovery Support Group helpful. Link? https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

I am aware that Fibromyalgia is a common issue with CF, but CF doesn't always have this issue, a Strictly CF group would be great so we don't have to sift through the Fibromyalgia information. We can include that group if it does affect us.

@kcp4321 Thank you for the suggestion, I have just been diagnosed and am searching for all the info I can find. I am, apparently One of the lucky people that doesn't have a severe issue, but is sure is very impactful on my life. I am still hoping for confirmation that CF is truly my diagnosis and would love a second opinion. But an not sure where to go for that. I feel that the doctor has simply given up and is just putting a name to something he is not certain of and it was a convenient way not to delve into the problems I have. If it truly is CF than I know what I am battling, but am worried it might be another issue , that , if not treated, might worsen without treatment.