MCTD with overlap of sceladerma

Hi all I was diagnosed with MCTD and overlap systemic scelederma. Anyone else have it my Dr isn’t to informative about what to expect as disease proceeds? Would like to know if what I’m experiencing means it’s getting worse. My joints don’t hurt that bad but I can not stand for more than 5 minutes it just burns I can walk for about 30 minutes by the end I’m exhausted -Appreciate any feedback Thanks