MBC 7 years later: Do you ask yourself why and what ifs?

Posted by ks3 @ks3, Mar 6, 2022

Initial dx stage 0 DCIS l breast, - sentinel node bx. Seen by oncologist no further TX
7 yr later MBC, with Mets to bone, skull,spine. Anyone similar situation?

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@windyshores In my case, the breast cancer is diagnosed first, through biopsy. Then the bones showed up in the PET scan. They also did a bone biopsy and confirmed that it's the same cancer from the breast that are at the bones.

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I'm with keepmoving2. There are many new treatments and every day we're alive (chronic, or as I like to call it "recovered for the moment") is another day for researchers to come up with even more new drugs. Wishing you the best for your new treatment and tests.

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@ks3

I had a bilateral mastectomy in 2015 with referral to breast cancer oncologist. Who said no further TX. I did have regular screenings primarily with breast cancer surgeon and gyn. I participate in a aging, memory mood NIH study which involves periodic functional MRIs. Which in May 2021 showed lytic lesions of skull bones. Because I have a history of medullary thyroid cancer in the 90's. Underwent multiple diagnostic tests to determine type of cancer, biopsy of lytic lesion on L5 confirmed mbc. New wonderful breast specialty oncologist started me on Verzenio and Anastrosole 10/1. So far so good, with PET scan scheduled for April to check therapeutic effect.

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I'm sorry that you have this new diagnosis to deal with and am sure that all breast cancer survivors empathize. And ponder their futures with these sagas. But it's great that this was caught and can be addressed now. And I share your wonder whether the earlier oncologist might have been insufficiently attentive in an advisory role. I'm a convert to the second opinion, even third if called for, school of thought for anything requiring decisions that can have irreversible consequences. The good news is that cancer understanding and treatment are evolving at a rapid clip so we're surviving so able to share what we've learned and benefitted from.

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@ks3 I know you are probably getting anxious about that upcoming PET scan, I wanted to check in with you. How are you feeling on the verzenio, and anastrazole? I think what if’s are inevitable, but I hope you aren’t making yourself crazy with them. We all make the best decisions we can based on the available information at the time. I admit to wishing sometimes I would have done a few things differently, but now I am too busy working to outrun this thing to think about that.
Are you doing things that bring joy? Are you allowing yourself to be rested and comfortable?

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@auntieoakley

@ks3 I know you are probably getting anxious about that upcoming PET scan, I wanted to check in with you. How are you feeling on the verzenio, and anastrazole? I think what if’s are inevitable, but I hope you aren’t making yourself crazy with them. We all make the best decisions we can based on the available information at the time. I admit to wishing sometimes I would have done a few things differently, but now I am too busy working to outrun this thing to think about that.
Are you doing things that bring joy? Are you allowing yourself to be rested and comfortable?

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Thanks for your concern. Only some bone pain and fatigue for side effects. I am fortunate! My grandchildren and family bring me great joy.😊 After hearing other mbc survivors stories, I realize that cancer is a relentless foe, frequently recurring without a clue. Hope you are well 🎀.

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@mssewest

After 10 years diagnosed MBC to chest wall. abdomen, spine, ribs, liver and Mets to bones. Currently doing chemo and tumor marker numbers are coming down. Just had chemo #3 of 6. Will do scan in the next 2 weeks to see size of tumors and will go from there. I think about this chronic disease all the time and how much time I really have on earth. I’m not giving up but will fight with all I have. I keep my faith and continue to talk to God, he does hear prayers. I plan on living each day to the fullest.

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Hi, I was diagnosed in September 2019. Is it possible for us to communicate via email? If so, I will share my email.

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@rraw

Hi, I was diagnosed in September 2019. Is it possible for us to communicate via email? If so, I will share my email.

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@rraw, I love that you have added a picture. Beautiful.
If you wish to communicate with another member, we suggest using the secure private message function to exchange personal contact information rather than posting your email address in the public forum.

I'll also add that by continuing to exchange here in the forum, your experiences, tips and knowledge benefit many. And you benefit from the collective knowledge of the members of the group.

@rraw, how are you doing?

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@mssewest

After 10 years diagnosed MBC to chest wall. abdomen, spine, ribs, liver and Mets to bones. Currently doing chemo and tumor marker numbers are coming down. Just had chemo #3 of 6. Will do scan in the next 2 weeks to see size of tumors and will go from there. I think about this chronic disease all the time and how much time I really have on earth. I’m not giving up but will fight with all I have. I keep my faith and continue to talk to God, he does hear prayers. I plan on living each day to the fullest.

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I was thinking of you today, I thought I would let you know. How are you doing with your chemo? Have you had your scan yet to check on your progress?💕

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