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tomewilson
@tomewilson

Posts: 54
Joined: Jun 06, 2016

Mayo Presentation at the Northwoods NETs group - 1/14/18

Posted by @tomewilson, Sat, Jan 20 11:25am

Dr. Thor Halfdarnarson, a medical oncologist from Mayo Rochester, discusses the team approach at Mayo and best practices for the diagnosis, management and treatment of neuroendocrine tumors. Thor is accompanied by physician assistant Rachel Eiring, a member of the neuroendocrine cancer team at Mayo Rochester. https://youtu.be/B_PEkYN9Yz4

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This is a written summary of the meeting.

Shared files

Northwoods NETs Meeting (Northwoods-NETs-Meeting.pdf)

@tomewilson

This is a written summary of the meeting.

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Hi Tom, @tomewilson

Thank you for the Youtube and attachments from the conference. I’m looking forward to seeing them!

@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727 @dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @gman007 @mollie59 @amani79 @collielady @somefan @debf @immmm @kenlucier @somefan

@tomewilson

This is a written summary of the meeting.

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Thank you so much for sharing this with us!!

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

@mollie59

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

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@mollie59 Hello Mollie:

I’m glad that you were able to attend and found the presentation informative.

I’ve been thinking about you and wondering how you are feeling since your heart surgery? As I recall, you had some complications and I hope you are recovered now.

If you are comfortable doing so, please send us an update as to how you are doing.

Teresa

@mollie59

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

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Hello, here is an update. Sept 21 heart surgery to replace two valves in my heart. 2 days later a carcinoid crisis/storm causing my body to crash. Renal failure from all the drugs used, causing my kidneys to shut down. Dialysis for 6-7 weeks and Oct.31 I was taken off dialysis completely. Dec. 12, Jan. 4 & 11 thoracentisis procedures to drain the fluid build up in the sac around my left lung. Fluid was negative for cancer. MRI w/out contrast on Dec. 13 showed my caracinoid liver cancer to be stable, I continue with 40 mg sandostatin every 28 days. i am trying to regain my strength so in March I can have a MRI with contrast. My symptoms from carcinoid are under control with the sandostatin with minor issues the last few days before my injections. i am on the mend slowly,just so thankful the dialysis was short lived and my kidneys are regaining their strength. I pray daily for each and everyone fighting their own battles with their health. Carcinoid cancer is a hard one to understand and even hard to explain to others. Have a great day, everyone! Stay positive
Sincerely,
Mollie

Your positivity in the face of such adversity is in the SUPERHERO range. You have my prayers and I know they are heard, but your resilience may be the reason you beat this and live a long time and enjoy the rest of your life. It is hard to imagine how silly I feel when I whine about my stomach hurting, or my pancreas or anything else that is so much less than what you are dealing with 24/7. APPLAUSE and not the golf clap kind either; full out celebration for someone who sees the world through the lenses you do when they could be so much darker and everyone would understand. Blessings for the future!

@mollie59

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

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@mollie59
Mollie,

I’m so glad to get your report and to know how much progress you have made! I’m sure you are relieved to be off dialysis and getting your strength back. I’m especially pleased that the fluid showed no cancer and that the liver carcinoid is stable. Keeping carcinoids stable is really the best news yet. I’m so happy for you!

Teresa

Thank you for the sincere comments. Supporting one another is so important and helpful, however, the real heros are God and my doctors

@mollie59 Yes when God works through good doctors you have a great health connection!

Teresa

@mollie59

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

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Mollie, Bless your Heart…. and your kidneys, and your liver!! Prayers for gaining strength and for continued stability of this cancer❤️

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