Mayo care for Primary Biliary Cholangitis (PBC)

Posted by michellesauer @michellesauer, 12 hours ago

I’m wondering what other people’s experience has been with getting care for their PBC at Mayo. I just read a disturbing post from someone who said that they did not receive good care, but they didn’t state what they were seeking treatment for.They said that nothing was done for them. I understand there are diseases where nothing can be done, but I want to know what other people‘s experience is and what I can expect when I go for my appointment. I’m hoping for a biopsy. It’s been eight years since I had one, and I’d really like to know if my disease is progressing. I know my itching and fatigue are getting worse but that that is not an indicator of progression. Can anyone help out with information?

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