Many neuropathy issues, so why so few doctors who know?
I had a lumbar spine surgery that resulted in nerve root injury and neuropathic foot symptoms that were not present before the procedure. When I have raised this with the surgeons involved and with other neurosurgeons and orthopedic surgeons since, the consistent response has been that post-surgical nerve rehabilitation is outside their scope, and none of them could point me toward anyone who could help. A few suggested DRG stimulation, which I researched and found was not appropriate for my type of injury. The rest had nothing to offer at all. I have felt increasingly lost with no specialist and no path forward.
I am not trying to assign blame. I understand that surgical complications fall into a gap between what spine surgeons do and what rehabilitation specialists typically treat. But I need a way forward and I have not been able to find it through the specialists I have access to.
Has anyone here found a type of specialist, whether in physical medicine, rehabilitation, or another field, who works specifically with peripheral neuropathy caused by spinal surgery? Any direction would be genuinely helpful. Thanks
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Have you been tested for B6 toxicity? Australia has been changing B6 daily doses down due to all the nerve damage from people having neuropathy from elevated B6. My daughter suffering terribly.
@smangione05
Sure thing. You can feed the questions with the answers to an AI agent and see what it says. You probably wouldn't want to post such private info on this community. Maybe you have access to an AI account? I use AI only for research, homework, and helping me prepare questions for a doctor. I don't follow AI blindly. 🙂
Don’t have access to an AI account. Is that something that I should get? How would I go about obtaining one if you think it beneficial.
Again, thank you for sharing your knowledge with me and others.
@smangione05 You can sign up for a free account at claude.com
Maybe best to ask a friend or family member to help is already using AI. Or just bring your answers to those questions to your doctor for feedback.
I do think that AI can be a useful tool but I would be cautious about using it for medical diagnosis. Here’s a good article on the topic.
- Thinking about AI to diagnose symptoms? Know this first https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/can-ai-help-diagnose-symptoms/art-80011182
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