Anyone out there with this condition
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I am doing good and feel good I am starting Chemotherapy next week.
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@angelu94, what type of chemo are you getting? How are you doing?
Hello @roberthall0452, welcome to Connect. I would like to introduce you to another new member, @harvie, who also recently posted about being diagnosed with mantle cell lymphoma. @roberthall0452, if you are comfortable sharing a bit more, how are you doing with this diagnosis? Has there been any discussion of a treatment plan?
Thank you for your response, he sees his dr. today. He feels terrible. I hope he feels better soon! He is so tired and seems to breath heavy. God I want him to feel better.
How is your husband doing, @arbutus? How are you doing?
Thank you so much for your response, the name of the infusion was rituxan and was given about a week ago.
Good morning, @arbutus. Oh, good old Rituxan! Quite a few of us members have had Rituxan (rituximab) infusions, including myself.
It’s highly effective and doesn’t generally cause many side effects. Occasionally there can be a reaction within the first hour or two while being administered but that’s handled quickly by the infusion nurses.
You mentioned your husband is experiencing exhaustion and low blood pressure after his infusions. Both are potential side effects from the medication. If your husband is already taking medication for HBP then you should consult his doctor about altering his dosage for a while.
I found a good article for you from Chemo.com which talks about Rituxan, how it works, side effects and such.
His energy should pick up again soon. When is his next infusion?
Hi @arbutus, while we’re waiting for other members to reply about their experiences with Mantle Cell Lymphoma, could you tell me what infusions your husband received?
There are several possible treatments so it might be helpful to know the name to see if others had the same medication.
It’s not unusual after chemo infusions for blood numbers to drop along with the cancer cells. Those treatments often target fast growing cells. Unfortunately they don’t differentiate and so blood cells, along with cancer cells involved. The effects are usually felt around 7-10 days after treatment with fatigue and weakness. Once the blood numbers start regenerating, especially the white blood cells, then he should feel a little perkier.
I hope he gets good news at the oncologist tomorrow! Will you let me know please?
My husband was recently diagnosed with mantle cell lymphoma. He is 66 and otherwise in good health. He had a three day Infusion In the hospital, we see his oncologist tomorrow, hopefully numbers went down. He is very tired and his blood pressure is low. Can anyone share if this has happened to you? Thank you
@nhlbob “So ironic you say that; my wife and sister keep telling me something to that effect as well”.
Your comment made me giggle a little because what does that tell you??
Listen to the women in your life! 😂
Good morning, @nhlbob, Happy New Year! I haven’t checked in with you for a while. The last time we talked you were going to be trying IVIG treatments for 4 months. Any improvement? How have you been feeling?
Yes, I meant CLL. I am scheduled for a Wide Neck Dissection on The 29th of
September on several lymph nodes on my left side in the cervical area.
Hi @shirlpat, just a quick note to let you know that I'm thinking of you as you prepare for the neck dissection this coming week.
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