Managing post exertional malaise

Posted by Athena Atkins @athenaatkins, Feb 14 7:14pm

It’s been about five weeks since I got Covid, and I am struggling with the push-crash cycle of post exertional malaise. I was feeling good over the weekend and foolishly pushed my body too far with a 45 minute walk in the woods. Three days later I am still almost completely incapacitated by fatigue and plagued by muscle aches and headaches. My husband wants me to push myself a bit through the fatigue by getting back into our normal routine of walking the dogs for 15 minutes in the morning (which I had been tolerating), but I am not sure if that is a good thing to do while I am in the crash recovery phase.

I would like to get some advice on whether I should strictly rest until the fatigue subsides, or if it is better to add some light exercise into the mix so I don’t decondition even more. Honestly, I am terrified that I might do something that will prolong the fatigue, because it is having such a negative impact on my ability to work.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

It is good to get tested to make sure you don't have cardiovascular or other covid-linked problems. I caught covid last March on a 7-day 350 mi bike ride and was sick for about a week. The long covid (LC) hit after that, and the main symptom was post-exertional malaise (PEM). So, I went from biking up to 80 mi/day to 5 mi on a exercise bike followed by a nap. Overall, I went from 100% to 30%. PEM is a waiting game, you can exercise/rest, but only to the extent that it doesn't trigger PEM because it can take hours or days for PEM to subside. If you are feeling "like your own self" one day, don't push it because the PEM crash is in the background. Resistance (weights) is easier than aerobic exercise. PEM is triggered by exertion, stress, not enough sleep, and who knows what else. Consider keeping a food log; covid can trigger food intolerances in some people (for me, it was celiac after having H1N1 years ago). My LC did go away, but it took 8 months.

This link is not a peer-reviewed paper, but has useful info: https://www.yalemedicine.org/news/long-covid-symptoms. These CDC guidelines are for doctors, so info more for what they should look for. https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/post-covid-conditions.html

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@axh11

I have been back to work and daily activities for just a week since having Covid for the first time. Each time I try to do a light workout, I end up feeling exhausted and unwell. Following this thread in hopes of answers!

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Do NOT try to exercise right now! Google "post exertional malaise." At the moment, pushing yourself could lead to long-term worsening of symptoms. Rest as much as you can for the next month or two, then gradually increase activity and see if you can tolerate it without feeling worse the following day.

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@gryphon

Do NOT try to exercise right now! Google "post exertional malaise." At the moment, pushing yourself could lead to long-term worsening of symptoms. Rest as much as you can for the next month or two, then gradually increase activity and see if you can tolerate it without feeling worse the following day.

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You are absolutely right. For last few weeks, if I do a little too much one day, I can feel it the next day. I guess I need to nudge the throttle forward a little at a time, can't rush this. Your suggestion makes good sense.

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Thank you all for sharing your experiences! I appreciate your support and advice. I had been pacing myself fairly well since I had the crash that prompted me to reach out to this community, but I am back in another (albeit milder) crash that started yesterday. I think this time it was triggered by driving - I was in the car for about 2 hours driving back/forth to appointments. I really find driving to be very exhausting because it’s just constant focus.

It’s really frustrating to accept that this is my life now, and really scary to not know how long it will last. Up until yesterday, I was feeling pretty good. Pacing myself for sure, but also functioning fairly well within those constraints. I had even convinced myself that I was improving and would be back to normal soon. The crash this week has made me realize that I am not out of the woods, that I am still vulnerable, and it scares me.

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@athenaatkins

Thank you all for sharing your experiences! I appreciate your support and advice. I had been pacing myself fairly well since I had the crash that prompted me to reach out to this community, but I am back in another (albeit milder) crash that started yesterday. I think this time it was triggered by driving - I was in the car for about 2 hours driving back/forth to appointments. I really find driving to be very exhausting because it’s just constant focus.

It’s really frustrating to accept that this is my life now, and really scary to not know how long it will last. Up until yesterday, I was feeling pretty good. Pacing myself for sure, but also functioning fairly well within those constraints. I had even convinced myself that I was improving and would be back to normal soon. The crash this week has made me realize that I am not out of the woods, that I am still vulnerable, and it scares me.

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I was a cereal breakfast person but after 2 covids I crash near 4-5 hours to last 6-7 I have to have a substantial Bft and a nap and a snack midmorning to get to 1PM. If i'm planning on going shopping I have to skip BP meds till I get back.
So goes the battle for 3 yrs. However I'm 86

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