1. < Digestive Health

Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Nov 23, 2022

@annief -
Before my stent procedure I was told that many of my symptoms may disappear. It has been a slow process, very confusing, and I did not have severe pain until a while before the stent.
I had reflux, gastritis, nausea, bloating, feeling full after a few bites and the fatigue. All of these due to stenosis of the celiac artery.
My gastroenterologist wanted to perform an endoscopy anyway to make sure nothing suspicious was lurking. All was well.
So- it’s very good that you will have follow ups!

REPLY
bfort | @bfort | Nov 24, 2022
In reply to @astaingegerdm "@annief - Congratulations on your colonoscopy! I had my latest- and last one I hope, 2021...." + (show)
@astaingegerdm

@annief -
Congratulations on your colonoscopy! I had my latest- and last one I hope, 2021.
It’s a very good order you got to follow up with your doctor in a month- especially since your IBS symptoms seems excessive.
I’m now 2 weeks out from my stent procedure and I am so pleased that all my debilitating symptoms are gone! I’m still fatigued, but not as bad as before. The entry was in the groin.
I would definitely do this again if I had to!

Jump to this post

Thanks for posting! I'm trying to make up my mind about having it done or not. I'm almost 6 months Post op from nMALS with no relief.
Not sure what to do.

REPLY
1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Nov 24, 2022
In reply to @bfort "Thanks for posting! I'm trying to make up my mind about having it done or not...." + (show)
@bfort

Thanks for posting! I'm trying to make up my mind about having it done or not. I'm almost 6 months Post op from nMALS with no relief.
Not sure what to do.

Jump to this post

@bfort
After my MALS surgery 2015 I was fine until 6 months later when pain returned. I had my first stent then. Fine for 7 years, now had second stent. All fine.

REPLY
1 reply
bfort | @bfort | Nov 24, 2022
In reply to @astaingegerdm "@bfort After my MALS surgery 2015 I was fine until 6 months later when pain returned...." + (show)
@astaingegerdm

@bfort
After my MALS surgery 2015 I was fine until 6 months later when pain returned. I had my first stent then. Fine for 7 years, now had second stent. All fine.

Jump to this post

Its 6 months now for after my nMALS surgery and I may need a stent. Do you have any pain after the stent surgery from where the MALS pain was? I hate to have to go under another Surgery to wake up with the same pain again. So glad you are feeling good. Praying you continue this new journey of being pain free. ❤️🙏

REPLY
1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Nov 24, 2022
In reply to @bfort "Its 6 months now for after my nMALS surgery and I may need a stent. Do..." + (show)
@bfort

Its 6 months now for after my nMALS surgery and I may need a stent. Do you have any pain after the stent surgery from where the MALS pain was? I hate to have to go under another Surgery to wake up with the same pain again. So glad you are feeling good. Praying you continue this new journey of being pain free. ❤️🙏

Jump to this post

@bfort - The stent placement is a fairly easy procedure. I was half awake- they call it conscious sedation.
I was a little sore for a couple of days, but the other pain is gone!

REPLY
dan1230 | @dan1230 | Nov 27, 2022

Kelly,
Good morning. I am having bypass surgery (of my SMA) in roughly two weeks and was wondering how the post-op recovery went? Hope you are doing well.
Thanks,
Dan

REPLY
sophie6709 | @sophie6709 | Dec 7, 2022
In reply to @lasirvent "I’m in the same situation. I had open mals surgery Jan. 2020 with the ligament cut..." + (show)
@lasirvent

I’m in the same situation. I had open mals surgery Jan. 2020 with the ligament cut back to the spine and nerves addressed. I’m thankful that the mals pain is gone but 8 months after, I had a new ct and upper bowel series as I feel like someone has an exercise band around my upper epigastric area and throughout the day it just gets tighter and tighter. In Feb. 2021, I had Radio Frequency Ablation on both sides (one week apart) and it gave me relief for 8 weeks. Last month, I did a trial DRG pain stimulator and it took away 75-80% of the pain, so we know my problem is nerve damage. I’m scheduled on Nov. 4, for a DRG permanent stimulator. I just can’t handle a million tests again. I am 65.

Jump to this post

I have been seeing GI for months, but haven't been diagnosed. My upper abdomen is squeezed really tight. I also suspect I have MALS. I'm looking into the Facebook support group.

REPLY
cnash1 | @cnash1 | Feb 19, 2023

My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain. In doing a complete work up at the hospital they found a rare condition called Mals. Looking for any journeys regarding this syndrome as well as anyone who experienced severe chronic pain after a cdif infection.

REPLY
6 replies
djw4u | @djw4u | Feb 20, 2023
In reply to @cnash1 "My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain...." + (show)
@cnash1

My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain. In doing a complete work up at the hospital they found a rare condition called Mals. Looking for any journeys regarding this syndrome as well as anyone who experienced severe chronic pain after a cdif infection.

Jump to this post

I am working with an Amish young lady who has been diagnosis’s with MALS, POTS, and Nutcracker syndrome. I would love to hear from others on this same journey as it is so rare.

REPLY
2 replies
bfort | @bfort | Feb 21, 2023
In reply to @cnash1 "My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain...." + (show)
@cnash1

My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain. In doing a complete work up at the hospital they found a rare condition called Mals. Looking for any journeys regarding this syndrome as well as anyone who experienced severe chronic pain after a cdif infection.

Jump to this post

I'm so sorry to hear you were diagnosed with MALS. It is a very painful and difficult diagnosis.
There is a website called. The MALS Foundation which is very helpful with how to handle MALS.
Also, Facebook has a great support page called MALS Awareness. It is an amazing page to learn and ask questions with real experience. But please be open minded because everybody body's and experiences may be very different.
MALS is a very rare diagnosis. There are not many doctors who know what it is or how to treat it.
I have had 29 tests and my gallbladder removed before I was diagnosed.
Stay positive. You need to be your own advocate to get things done. Please feel free to reach out to me. Good luck. 🙏🙏❤️

REPLY
2 replies
View MoreView Less
Please sign in or register to post a reply.