Malignant melanoma of the choroid in the eye

Posted by twocents @twocents, Nov 1, 2018

My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?

Interested in more discussions like this? Go to the Melanoma & Skin Cancer Support Group.

Profile picture for Susan, Volunteer Mentor @grammato3

@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376

In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?

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Thank you appreciate it Susan .

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@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376

In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?

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I was diagnosed wirh the same diagnose 10 dys ago . Melonoma of the eye I have my 1st Petscan on Thursday.
Surgery with the plaque radiation.
What does the recovery look like as far as going back to work ?
I am a chiropractor and job is physical at times .
Dan

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It’s been 2 years since I had this done. No changes in all areas. I continue having CT scans and MRI’s. One day at a time.

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I have experienced the same. Recommend keeping up light exercise, such as walking in parks or along your favourite beaches, or practising qigong - much has been written on the latter to reduce anxiety. I watch streaming videos to fill in idle time when I don't feel like exerting myself. All the best, Paul.

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Profile picture for eagleswings @eagleswings

This describes the study. There are no benefits for me, but my hope is this will help with treatment of this cancer for the future. ABOUT THIS STUDY
This effort is to investigate cancers and
utilize many types of data to predict cancer
risk and progression.
Every cancer and every patient is different.
Patient Mosaic aims to understand those
differences.
WHY IS THIS STUDY BEING DONE?
Patient Mosaic is the first-of-its-kind effort
intended to extensively analyze cancers that
will help researchers develop new treatments
and personalize current treatments to each
individual patient for better outcomes.
HOW ARE YOU HELPING SCIENCE?
By choosing to participate in this study, you are helping to:
• Understand cancer better.
• Investigate the biology of your cancer, immunity and
microbiome, so we can develop better treatments.
• Accelerate and expand clinical trials.
Note:
1.You will not be billed or compensated in any form at any
given time during this study.
2.There are no benefits for you in this study and you will not
receive the results of the research testing performed as
part of this study. However, your participation and
findings from this research may benefit future patients.

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The NCI Why Participate in a Clinical Trial might be of interest.
https://www.cancer.gov/research/participate/clinical-trials/why-participate

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Yes! I had ocular melanoma diagnosed 10/24. Had plaque surgery, plaque stayed in 7 days. In Feb 25 Mets showed up in liver. It was all clear the previous October. I am stage 4 liver cancer now. Having Y90 procedures done now then will take Kimmtrex immunotherapy. A lot has happened in a short period of time.

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I have been since April this year 25. was diagnosed with Non Hodgkins Lymphoma in 2016. I am a Vietnam Veteran that was exposed to Agent Orange (67 68 69)

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Profile picture for birthdaycake @birthdaycake

My husbands eye diagnosed at end of pandemic so appointments were far out as in months and no priority for eye cancer sadly. In a matter if about three months his tumor began to infiltrate the surrounding orbital muscle which made his scheduled proton treatment nul. He ended up getting radiation but lost all vision. His eye also got retinal detachment.

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@birthdaycake, this is certainly a significant change for both of you. how are you and your husband adjusting to the loss of his vision?

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I'm sorry to hear that. The main advice I can offer is to find out everything you can about your condition so that you understand what is going on and the possibilities before you discuss things with your doctor. The cancer is very rare and your condition is multi-factorial so your doctor won't know everything.
I found "Foods That Fight Cancer: Preventing Cancer Through Diet" very useful to begin with. It is hard to get now but there would be others like it. (Alternately, try "Anna’s Archive" for a free pdf.)
Also, metastases may take up to 35 years to form and then most are found in the liver, so don't stress your liver. Best wishes, Paul.

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