Malignant melanoma of the choroid in the eye
My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?
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Thank you appreciate it Susan .
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2 Reactions@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376
In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?
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4 ReactionsI was diagnosed wirh the same diagnose 10 dys ago . Melonoma of the eye I have my 1st Petscan on Thursday.
Surgery with the plaque radiation.
What does the recovery look like as far as going back to work ?
I am a chiropractor and job is physical at times .
Dan
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2 ReactionsIt’s been 2 years since I had this done. No changes in all areas. I continue having CT scans and MRI’s. One day at a time.
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6 ReactionsI have experienced the same. Recommend keeping up light exercise, such as walking in parks or along your favourite beaches, or practising qigong - much has been written on the latter to reduce anxiety. I watch streaming videos to fill in idle time when I don't feel like exerting myself. All the best, Paul.
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4 ReactionsThe NCI Why Participate in a Clinical Trial might be of interest.
https://www.cancer.gov/research/participate/clinical-trials/why-participate
Yes! I had ocular melanoma diagnosed 10/24. Had plaque surgery, plaque stayed in 7 days. In Feb 25 Mets showed up in liver. It was all clear the previous October. I am stage 4 liver cancer now. Having Y90 procedures done now then will take Kimmtrex immunotherapy. A lot has happened in a short period of time.
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1 ReactionI have been since April this year 25. was diagnosed with Non Hodgkins Lymphoma in 2016. I am a Vietnam Veteran that was exposed to Agent Orange (67 68 69)
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1 Reaction@birthdaycake, this is certainly a significant change for both of you. how are you and your husband adjusting to the loss of his vision?
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1 ReactionI'm sorry to hear that. The main advice I can offer is to find out everything you can about your condition so that you understand what is going on and the possibilities before you discuss things with your doctor. The cancer is very rare and your condition is multi-factorial so your doctor won't know everything.
I found "Foods That Fight Cancer: Preventing Cancer Through Diet" very useful to begin with. It is hard to get now but there would be others like it. (Alternately, try "Anna’s Archive" for a free pdf.)
Also, metastases may take up to 35 years to form and then most are found in the liver, so don't stress your liver. Best wishes, Paul.
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