Struggling with making an osteoporosis treatment decision

Thank you for the kind words. I think we all need to come to our decisions in our own time. They're not wrong or right. They are just yours. Good luck in what you decide.

Is it possible to improve your DEXA numbers with exercise and healthy eating with supplements. I asked my doctor and the question was ignored. She wants me on Evenity?????

Thank all of you for sharing. Helps me to feel I am not alone in this experience.

Blessings.

@bbones2023 I believe it is difficult to improve DEXA with diet and exercise after menopause. Maybe that is a good strategy for osteopenia and even early menopause.

If you want a med that is adjustable I did Tymlos and started at a low dose and ramped up to let my body adjust. I almost never did a full dose and still had excellent gains.

Thank you for letting me know about your experience.
I will check it out.
You give me hope.🙏

Now at 75 I am leaning on something that my physician asst. said, "just live!". It is so helpful when thinking about aging and all of the ways that my body tells me that no one gets out alive.😉

Thank you--your positive outlook is very encouraging!

I have severe Osteoporosis and this what I’ve learned:
Don’t wait too long to make your decision. Why? Because the solution you choose may not work for you and you’ll have to go onto the next option. That is what happened with me. I started with Tymlos and ended up on Prolia due to side trouble some side effects.

Also, make sure your DEXA scan results are accurate. The DEXA scan I had last year, not at a Mayo facility, was incorrect. Although the radiologist noted a ‘Statistically significant decrease’ on one of my results. No one goes from -4.7 to -0.4 in one year. My PCP did not notice this.
Good luck.

I have been told by my doctor to take Reclast after I've had Prolia (which gave me horrible side effects) and Evenity (no problem). I am extremely concerned about a one year shot because if you have side effects you are suck with those for one year. I'm not sure I want to give up one year of my life dealing with side effects. I'm prone to hair loss and can't take any drug that might make it worse.
What side effects have others had on Reclast and is there an alternative as I've had everything else already including forteo?

My doc will do a 20% dose of Reclast as a test dose. I talked with Keith McCormick who suggested I continue at that dose, probably every three months.
Some have followed up with alendronate (Fosamax). It is not as potent but still good, I was told. I have terrible GERD and can't take that.

It's tough! I was on cancer meds for 5 years, with side effects, then Tymlos for two years, with side effects, now hoping for Evenity for a year, then Reclast for an unknown period of time.

Side effects have been tolerable and worth it but I do feel my energy level is pretty darn low. I think we would all love to be drug free for awhile! But I am carrying on and wish you luck doing the same,

This is what a Google result showed. The effects are not for a year only for a shorter period of time.
I hope this is correct because I've been told now that I need to take the reclast infusion and I am a very active person. "Showing results for how long do the side effects of reclast infusion last
Search instead for how long do the side effects of reclast fusion last

You might have body aches, fever, or chills after you get your Reclast (zoledronic acid) infusion. Most of these infusion-related side effects happen within the first 3 days after the infusion. They typically go away within 3 days, but can last up to 2 weeks."