Struggling with making an osteoporosis treatment decision

I had a Reclast infusion (my first and last) three days ago and my blood pressure has skyrocketed. I can’t sleep either. This stuff is the devil and I wish I hadn’t taken it. I’m not in a “last resort” situation as my doctor said to urge my taking it. Beware, y’all!

I had two infusions and no side effects. But my dental implants got in the way. I wished I could have had the other three infusions. Maybe I would have been in a better place before starting Tymlos. Now dental surgery is in my way again to start Prolia. So we wait till Jan. or Feb. 2022. Thanks for your reply. Stay safe and be well.

I have read that biphosphanates make Tymlos andd Forteo less effective,so its probably good that you stopped.

I am so sorry to hear about the problems you are having. The FDA list hypertension as a side effect, but I didn't see insomnia on the list. Hope you are getting help from you doctor for the blood pressure issue, to avoid additional problems. (https://www.accessdata.fda.gov/drugsatfda_docs/nda/2011/021817Orig1s012.pdf). Were you told about being hydrated, taking Tylenol, calcium and vitamin D for the 'acute phase' symptoms?

I have Hashimotos and have taken synthroid for many years with satisifactory results. I also have osteoporosis and took Fosamax for a number of years. I stopped taking Fosamax for while due to increasing side-effects of aching in the groin area, and increasing pain and deep aching in lower legs and feet. I experienced some stomach issues on the days I took Fosamax. In a matter of several months after stopping Fosamax the side-effects subsided. At my doctor's recommendation at a later time I again resumed taking Fosamax, but the side effects came back quickly and I stopped taking it completely. There are other drugs that are available, but I chose not to commit to drugs that I'd have to stay on permanently. My numbers were not good, but did improve slightly while taking Fosamax, but the side effects along with the documented possible dangers of this drug were the deciding points in my decision. I have not taken anything for osteoporosis in a number of years and feel well and live an active life, but I do eat healthfully and faithfully exercise for bone health. I am careful in my daily life, trying to choose activities that do not put my bones at risk, etc. I want to strongly emphasize that anyone else's choice on whether to treat their osteoporosis and how to treat it will be different for each of you. Your lifestyle, medical background, etc., all need to be considered. Very important, do your research and read experiences and reviews of others with osteoporosis

@justdiagnosed I personally know nothing about strontium but I just googled it and came up with this article from American Bone Health. It does not sound as if strontium is a recommended option, the DEXA results are misleading.

@kilh It's a difficult decision on whether to try Tymlos again. Considering the side effects you had I would consult with the physician treating your osteoporosis and the physician who is your PCP and see what they think.

@dbmenger I'm sorry to hear you had such difficult side effects from Reclast. I know they can happen but it's an extremely small percentage of people who experience them. I assume you followed all of the prevention suggestions that should be done prior to the injection.

I am on Tymlos now but Reclast has been suggested as my follow-up drug so I am very interested in hearing about side effects.
JK

I just saw your comment! I had gone out of town to my mothers 98th birthday, so didn’t do so well following Connect. I will definitely look up Sara Meeks! Thanks for suggesting i watch her. I’ll let you know how i do!

Hi. Has anyone taken the drug Evenity for osteoporosis? Have you experienced side effects? Thank you.

I found that article about Strontium as well. It's a key ingredient in Bone Grow, which I was thinking of starting. I just started alendronate three weeks ago, with no side effects so far, but of course, would like to get off it before the "drug holiday" after five years of use, which the rheumatologist mentioned to me. Although I walk 6 times a week for an hour, it wasn't enough to keep osteoporosis at pay, plus now I take prednisone for an autoimmune disorder. So started specific strength training program for osteoporosis (Carol Michaels is on YouTube if you want to check her out) and purchased a vibration exerciser, which hasn't come yet, but I'm looking forward to using. Best of luck, tsc.

As the article says, strontium will throw off DEXA results (make bones look denser). The European agency similar to the FDA took strontium ranelate off the market due to risks of blood clots. Some supplements seem to have a trace amount, not enough to do anything good or bad. Grow Bone has 3.8 mg compared to the suggested dose (as I remember) of 680 per day.