Macrobacterium abscessus in lungs

Posted by mass @mass, Jan 31 6:33pm

Anyone with experience with this disease and treatment options

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@mass This is one of the infections that can affect people with Bronchiectasis, and its treatment is a little different than that for MAC. Here are several recent discussions on the topic where you can meet other with the same infection:
https://connect.mayoclinic.org/discussion/antibiotics-for-m-abscessus/
https://connect.mayoclinic.org/discussion/info-treatment-for-mycobacterium-abscessus/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-and-arikayce/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-clofazimine-dosage/
Have you had more than one positive culture to confirm the infection? Are you on medication for it now?

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@sueinmn

@mass This is one of the infections that can affect people with Bronchiectasis, and its treatment is a little different than that for MAC. Here are several recent discussions on the topic where you can meet other with the same infection:
https://connect.mayoclinic.org/discussion/antibiotics-for-m-abscessus/
https://connect.mayoclinic.org/discussion/info-treatment-for-mycobacterium-abscessus/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-and-arikayce/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-clofazimine-dosage/
Have you had more than one positive culture to confirm the infection? Are you on medication for it now?

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Hi there. I also have abscessus and was devastated when I was diagnosed having just finished 18 months on the big 3 for Mai.
So far my consultant is choosing to monitor me closely as I’m fairly stable with few symptoms. However if and when I need to be treated it will be as an inpatient for at least 4 weeks as the medication will be delivered through iv. And then hopefully further treatment at home. Not sure yet what the drugs will be but think the treatment is pretty tough.
Hope that information is helpful. Good luck!

REPLY
@sueinmn

@mass This is one of the infections that can affect people with Bronchiectasis, and its treatment is a little different than that for MAC. Here are several recent discussions on the topic where you can meet other with the same infection:
https://connect.mayoclinic.org/discussion/antibiotics-for-m-abscessus/
https://connect.mayoclinic.org/discussion/info-treatment-for-mycobacterium-abscessus/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-and-arikayce/
https://connect.mayoclinic.org/discussion/mycobacterium-abscessus-clofazimine-dosage/
Have you had more than one positive culture to confirm the infection? Are you on medication for it now?

Jump to this post

The only one was told to me for this problem is MAC, Mycobacterium vacuum complex iv. Infection that can occur nonturberculous, antibacterial's NTM. lung disease, infection caused by bacteria. Testing sputum and mucus can define what it is..

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I have never heard of this particular infection, "Mycobacterium vacuum complex iv." Can you tell us more about it?

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