Lymphoma

Posted by samson999 @samson999, Sep 30 2:25pm

My sister, who is late 60s, and has been afflicted with MS for decades, was just diagnosed with large B cell lymphoma, stage 4. She is starting chemo treatment this Thursday, Oct. 3. Does anybody here have experience with this?

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j0318 | @j0318 | Oct 2 8:44am

Hi @samson999 -
I was diagnosed with Diffuse Large B-cell Lymphoma (DLBCL) in November 2023. I had multiple tumors in my body (stomach, lungs, brain). Because of the brain tumors, mine was also classified as CNS lymphoma. Below are details on my treatments and remission if that helps in any way.

If you have specific questions on these chemotherapy treatments from a patient perspective, please feel free to reach out and I can share my experiences. Wishing you and your sister all the best as you move forward.

My Treatment:
I received 4 rounds of R-Chop therapy and 4 Matrix treatments at Mayo Clinic to target the multiple tumors. The final phase of my treatment was to include an autologous bone marrow transplant but I was unable to complete the transplant after chemotherapy due to insufficient stem cells.

My Current Remission:
I had good results with the treatments and am now in month 16 of post treatment remission. I get scans and labs every 3 months to confirm continued remission.

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