Crohn's and Now Lymphocytic esophagitis (LE)

Hello @kaforester3

You post an interesting question. It appears that lymphocytic esophagitis (LE) is considered rare.
I was not familiar with this type of esophagitis so I checked on Mayo Clinic's website and found this information.
https://www.mayoclinic.org/diseases-conditions/esophagitis/symptoms-causes/syc-20361224.
In this article it says that "LE may be related to eosinophilic esophagitis or to GERD." In thinking about this, I'm wondering, did this diagnosis follow a change in medications you were taking?

It is important to find a very good specialist who is well-versed in treating any unusual disorder such as this. Are you seeking a second opinion with a specialist who has some experience with LE? What does your current doctor say about your treatment?

I see you have already received some help from a Mentor.... I am sorry I can't help except to say this is an amazing web site; I have a multitude of other issues and as my husband says (he does too) take one day at a time and I respond.... can I take one hour at a time. Sorry to hear about your illnesses and hopefully you can at least find out what has helped others.... take care and I wish you the very best. J. (Canada)

I just found this site and am looking forward to searching through discussions, comments, and learning more about my multiple diagnoses.

Regarding this discussion specifically, I realize is several years old.

I was diagnosed with Lymphocytic Esophagitis nearly a year ago following Dysphagia that continued worsening. I had 3 EGDs with Dilations within 5mos and through biopsies was diagnosed with rings, strictures, furrows, and LE, along with a 'tiny' hiatal hernia, and Schatski's Ring during the 3rd procedures.

I've been in 40mg Pantoprazole & 0.125mg Hyoscyamine for 8 months.

I've made major dietary changes that, along with the meds, has helped a little with the Dysphagia, however it hasn't resolved completely. Thankfully food doesn't get stuck and come back up with every meal or pill, but it still happens multiple days per week.

I'll try the breathing exercises, as anything that may help is worth a try.

I have a f/I with my gastroenterologist next week, so will see where we go from here.

Thanks to the Mayo Clinic and their medical staff who provide guidance. I look forward to checking out my Sarcoidosis and other issues.

Thanks everyone! Hope you find good doctors and the right treatments for whatever ails you.

At 65, I was diagnosed with it last year. After two endoscopies (the last with a balloon), dysphasia, painful swallowing and vomiting subsided. However, the symptoms have returned. It's pretty rare, but I was hoping to have someone to commiserate with/maybe find or share information with.

Hi @bussingt - as Mayo Clinic Connect had this existing discussion where others are talking about l lymphocitic esophagitis, I thought you might benefit from having your post moved here:

- Crohn's and Now Lymphocytic esophagitis (LE) https://connect.mayoclinic.org/discussion/lymphocytes-in-the-esophagus/

Hoping members such as @hopeful33250 @nascar4433 @kaforester3 will chime in with their experiences with or knowledge of symptoms including dysphasia, painful swallowing and vomiting.

What does your doctor advise to do next with the symptoms having returned?

Hi, Lisa. Thank you so much for leading me to the right place. I haven't yet been back to the Dr. I have a pre-op for a major back surgery and have put off two eye surgeries as well. I'll address it with her then (in a couple weeks), but I think it'll wind up on the back burner due to other health issues. It's all been too overwhelming to focus on any one thing at a time. I'm very grateful for your help pointing me in the right direction 🙏❣️