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Lymphocytes in the esophagus: Lymphocytic esophagitis (LE)
I have been diagnosed with lymphocytes in my esophagus and I was wondering if anyone else has been. It’s been a long 4 years for me and when they finally get me on the right medication for my GI issues; they find something else!
Someone please help me; I have Crohn’s, an esophageal web that has to be dilated every 3 months, erosion in my stomach from the Crohn’s and now this!
I need a new regimen or something!
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Hello @kaforester3
You post an interesting question. It appears that lymphocytic esophagitis (LE) is considered rare.
https://www.mayoclinic.org/diseases-conditions/esophagitis/symptoms-causes/syc-20361224#:~:text=Lymphocytic%20esophagitis%20(LE)%20is%20an,eosinophilic%20esophagitis%20or%20to%20GERD%20.I was not familiar with this type of esophagitis so I checked on Mayo Clinic's website and found this information.
In this article it says that "LE may be related to eosinophilic esophagitis or to GERD." In thinking about this, I'm wondering, did this diagnosis follow a change in medications you were taking?
It is important to find a very good specialist who is well-versed in treating any unusual disorder such as this. Are you seeking a second opinion with a specialist who has some experience with LE? What does your current doctor say about your treatment?
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1 ReactionI see you have already received some help from a Mentor.... I am sorry I can't help except to say this is an amazing web site; I have a multitude of other issues and as my husband says (he does too) take one day at a time and I respond.... can I take one hour at a time. Sorry to hear about your illnesses and hopefully you can at least find out what has helped others.... take care and I wish you the very best. J. (Canada)
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