1. < Cancer: Managing Symptoms

Lymphedema Pain

Posted by marchelle @marchelle, May 2, 2024

I have been doing chemo since July 2023, and as a side effect, I have developed pitted lymphedema in my arms, legs, thighs and side. I am in chronic pain, and my legs feel like bricks, and heavy, making it hard to walk at times. Has anyone else had this problem? If so, do you have any suggestions for me. Thank you 😊

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Mentor
Ginger, Volunteer Mentor | @gingerw | 1 day ago
In reply to @mlledaffodil "Lymphedema in both legs, from auto immune disease, not cancer. Compression socks (when I can get..." + (show)
@mlledaffodil

Lymphedema in both legs, from auto immune disease, not cancer. Compression socks (when I can get them on) have mostly just moved swelling around, but I have kept trying. Same with elevation—lowering my legs after resting with them up is the worst pain as the fluid shifts. Exercise is the only relief for me, plus lots of fluids. I am lucky that my flare ups are episodic, but any injury (severe osteoporosis) can trigger the swelling—want to try massage next time.
The biggest frustration is the complete lack of medical interest

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@mlledaffodil Welcome to Mayo Clinic Connect! Lymphodema is definitely not fun to deal with, no matter the cause. Sometimes a doctor will suggest diuretics to help. Lots of times movement helps, be it walking, or dancing with your broom while cleaning! I have done all of those, plus the lymphatic massage. Fortunately, my gal taught me how to do self-massage on my legs, what to expect, etc. so I can do it whenever needed. What a great help that is!

As to lack of medical interest, take it on yourself to be your own advocate, and figure out how to address your situation. Not only will you be able to feel better, knowing you did it with your own case in mind, but the little things you do for yourself will make a difference, and you can adjust it as needed.
Ginger

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