Lymphedema of the neck: What did you do?

Posted by lilypilly @lilypilly, Jan 2 9:16am

Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?
I get regular massage on it but I need more.
Also a very dry mouth and phlemn in the throat. Help?

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@lilypilly, did the machine help you at all? They say no news is good news.

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@thomason

@lilypilly, did the machine help you at all? They say no news is good news.

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@thomason I have been using it for 2 days now. Even though the swelling doesn't look reduced, it is not as hard.
Thank you for checking in.

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I used a Flexitouch Plus to reduce and manage the lymphedema from the treatments. It worked quite well for me. Good luck as you move forward.

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Stanford university mechanical engineers and Gorgia Tech Woodruff College developed an injectable drug in trials and changed the flow of water near the sight of the cancer . The radiation treatments damage the lymph vessels that prevent the lymph vessels from squeezing out the liquid and in trials over many years reactivate these vessels and Stanford redirected the flow to reverse the flow to go out not in. The trial of one woman had 2 quarts of fluid in a leg and she had had breast cancer. Brandon Dixon
And his team saw that the nanoparticals that were in the
Drug reactivated these vessels
And kept them active again
Bay K 8644 went for FDA approval and I want to keep in touch with them as my hope is for their approval this year.
The pumps do after many months squeeze out fluid using them daily but some returns. I tried the one and it was hard to put on hooked up for months may not prevent fluid from returning and my Medicare did not cover pump which is expensive cumbersome.
You can call FDA keep informed as to approval. My latent effects
Of Lymphedema did not affect my neck but I go to private therapeutic massages wonderful but my scar tissue is
Problem with head mobility that makes massages stretch my head side to side up and down
.There are thousands of drugs each year seeking approval but this one has been finished in trials successfully but hope is there cross your fingers.

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