Lymphedema of the neck: What did you do?

Posted by lilypilly @lilypilly, Jan 2 9:16am

Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?
I get regular massage on it but I need more.
Also a very dry mouth and phlemn in the throat. Help?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Depending on the severity, I had lymphedema of the neck post radiation, not face. I ignored it for too long which was my fault then recently started doing the prescribed massages every night and wear a compression garment to bed and I have now seen tremendous improvement.
https://www.lymphedemaproducts.com/products/reynolds-swell-spot.html
I also had and still have a very dry mouth and had terrible phlegm that I thought would never go away but it finally did. BTW I'm 6 months post treatment. All these side effects from the nasty radiation take time.

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This device works miracles for neck lymphedema:
Homedics Shogun Shiatsu Kneading Neck Head Massager Model SM-444 Portable Vintage

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@sandy8043

I have had this as well following tongue cancer surgery, chemo and radiation. I use a lymphedema pump made by Tactile Medical in Minnesota. It was prescribed by my surgeon at Mayo Rochester and paid for by my insurance. I use it daily. https://tactilemedical.com/our-lymphedema-solutions/for-head-and-neck/flexitouch-plus/

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Thank you so much and it really helps?
I will speak to my Dr.

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I have had this as well following tongue cancer surgery, chemo and radiation. I use a lymphedema pump made by Tactile Medical in Minnesota. It was prescribed by my surgeon at Mayo Rochester and paid for by my insurance. I use it daily. https://tactilemedical.com/our-lymphedema-solutions/for-head-and-neck/flexitouch-plus/

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